My paralyzed girlfriend - unassisted pedaling

KTMShane699
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7/17/2015 10:44pm
Wow. What a story. And more so, what an inspiration your girlfriend is! She seems like she's a pretty incredible role model and someone you can look to when times are difficult.

Congratulations on that huge accomplishment. It's a testament to both her and you to have made those gains. Keep up the amazing work and don't stop now. Without people like her who aren't willing to accept the status quo and simply give up, we will never know how far we can go.

Wishing nothing but the best for both of you!

Shane
7/18/2015 6:18am
That is amazing! :-) I'm guessing that I don't need to tell you that she's a keeper!
TailSoHard
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7/18/2015 8:22am
That is amazing! :-) I'm guessing that I don't need to tell you that she's a keeper!
Yup! Wife her dude!

Awesome story, keep us updated on how she progresses!
mx510
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7/20/2015 12:36am
Awesome!!!!!!!

The Shop

sumdood
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7/20/2015 7:47am
yak651 wrote:
Positive thoughts to her continued improvements, pretty cool!
X2 !
Team Ideal
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7/20/2015 8:08am
That's awesome man, keep pushing. Thanks for sharing, wishing you both all the best
Tim507
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7/20/2015 8:08pm
Wow... made me smile and cry all in the same moment! Please keep is updated to her successes.
watson
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7/21/2015 11:09am
That's pure heart and determination. All the best in her recovery/rehab!
Andrew337
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7/23/2015 11:48am
Thanks, everyone. We've been struggling to repeat the same success on the spin bike since the first video I posted, but a couple days ago she managed to do 5-8 complete revolutions in a row, all on her own, and she did that 3 times. She also had a good day at the recovery gym on Monday, she was able to do a full knee extension completely unassisted with her left leg. Her right leg, did about 1/4 of extension. Sometimes things work better than other times, everything is constantly changing. She may be able to do something one day and not the next. We just hope things are trending towards working more often.

Something that's always interesting is when we are out in public and people ask her about her injury. She has no problem talking about what happened to her or what her injury is, she's always willing to answer anyone's questions. Some people obviously have known someone with a spinal cord injury and strike up a conversation with her. Others will ask something random like, "What's wrong with your foot?" and you're a little disappointed about how little they know about the severity of spinal cord injuries. But everyone always means well and is genuine and we appreciate their willingness to ask and learn.



Andrew337
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9/14/2015 10:33am Edited Date/Time 9/14/2015 10:34am
Been a while since I've posted an update, but progress is often very slow with spinal cord injuries so there hasn't been a whole lot to report until now. Lately she has had a lot more stability in her hips. Her function and feeling stops around the belly button level, so her lower abs and back muscles haven't been able to keep her hips stable while standing. Last week she was able to walk in the parallel bars with some assistance, as she has done before, but this time without a gait belt to steady her hips!



Aside from working on her recovery we've been getting more involved in adaptive sports. She has been hesitant in the past, because she still considers herself to be the same athletic and competitive person she was before she was hurt and didn't think adaptive sports could completely fill that void. There are some great non-profit groups in our area that offer all sorts of activities. We tried adaptive water-skiing a few times, she took right to it but it just isn't her thing. She says she feels like she's just using her arms and she's pretty tired of using her arms for things!



The Sea-Doo was pretty challenging, without being able to counter the corning forces with your legs it's pretty easy to get off-balance and get thrown off. It was okay when she was up front going at her speed and I could help keep her in position, but when I was up front I kept thinking she was just going to pull me overboard even on gentle turns. I hadn't been on a PWC in a few years, these things are beasts!



A few months ago we were on vacation in Colorado with her family and rented some ATV's, I think this was the most fun thing she's tried since she got hurt. She felt like anybody else on the trail, and she was able to see some awesome views.



We also did a little bit of sailing on a 18' Hobie Cat last weekend and she loved it, even though she didn't really get to do a whole lot. Next time out we're going to make sure she gets put to work and learns the ropes, I'm hoping sailing will end up being something she really loves to do. She's also excited to try wheelchair basketball in the next few weeks, and maybe some sled hockey.

Ah, almost forgot her favorite thing to do. This is her horse Cora, Yvonne has had Cora since she was three and they are nearly the same age. They share a very close bond, as Yvonne has worked with Cora her whole life. Even though Yvonne can't communicate to Cora through her legs any more, Cora still knows exactly what Yvonne is asking of her.



One of the toughest things for Yvonne has been finding sports that fulfill her while being paralyzed, but we've found a few and I'm sure we'll find some more.
9/14/2015 11:09am
Thanks for the great update. Very nice to see you two making the most out of life.

I feel like a slacker after seeing all the cool and fun stuff you guys have been doing!
yak651
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9/14/2015 11:41am
^X2, great job staying active!
Andrew337
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4/19/2016 7:12am
Long overdue for an update, so here we go. She has still be working hard on her recovery, we're going on almost 3 years since her injury. Last month, for the first time, she was able to hold her knees locked while standing. Her trainer at REACT Neuro-Rehab pulled her up to a standing position and normally would have to hold her knees in place the entire time so that they won't bend and let her fall. But he was able to take his hands off, and she held her legs straight for about a minute before lefty got tired and gave way. She's been able to do this with varying degrees of success ever since. These bits of progress are very motivating and make all of the effort and expense worth it!



Once a week at REACT she uses an elliptical type machine designed for repetitive gait training. She will spend an hour on this machine, with some of her weight supported through a harness, and it will help her go through the walking motions. She's gone around 3 miles in a session, and watches her heart rate to know that her body is working and the machine isn't doing all the work. She really likes this because it feels like a good cardio work out that she has been missing since she got hurt. But we have to be careful and watch for blisters! The first day she got a massive blister on her heel and couldn't use the machine until that healed (and new shoes).

Aside from recovery we've been fairly active. We tried wheelchair rugby for the first time and had a blast. Normally, wheelchair rugby is only for quadriplegics, but after their team practice they have recreational wheelchair rugby where anyone can play. Imagine full contact wheelchair sports, the chairs are built like tanks, and the players are gnarly.

We've also started racing autocross together. She ditched her boring refrigerator-white Camry late last year for a VW GTI, and decided to see how she does on an autocross course! She has done two events now, this weekend's event was in the rain. She has been steadily progressing but her hand controls are limiting her. I'm working on building a custom set that will give her finer control.





TailSoHard
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4/19/2016 10:00am
Look at that smile! She looks like she's having a blast!

Congrats on her progress, man, it's a refreshing change of pace to hear stories like this rather than the typical bullshit Facebook newsfeed clickbait...

Keep up the good work!
4/19/2016 10:20am
Awesome, thanks for the update bless you both!!!
colintrax
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4/19/2016 10:34am
Has she tried one of those steering wheel balls? Might help her with steering.
Anyways glad to see her having fun! I follow her Facebook recovery page and didn't see anything about autocross.
Also you gotta show us some videos of the wheelchair rugby. That just sounds cool af
4/19/2016 12:10pm
Andrew337 wrote:
Tonight, my girlfriend reached a pretty big milestone in her spinal cord injury recovery. For the first time in over two years, she has pedaled her...
Tonight, my girlfriend reached a pretty big milestone in her spinal cord injury recovery. For the first time in over two years, she has pedaled her mountain bike unassisted! We've been working at this for a few months now, a few nights a week I'll pedal her legs while she focuses on sending the signals. Over the past couple of weeks her legs have been on the verge of making the rotations on their own, but couldn't quite do it. Tonight, I quit pedaling for her and her legs just kept on going!



A little background on her injury... She got hurt in May 2013 while on a solo mountain bike ride on a familiar trail while I was stuck at school working on a project. Her helmet was cracked in three places, but the only real injury was to her back... she managed to break her T-11 vertebrae and now has a complete spinal cord injury. Ever since, she has worked tirelessly toward recovery, even though at times it just seems so out of reach. Every week she works out at REACT, a spinal cord injury recovery gym, has acupuncture sessions, and drinks traditional Chinese herbs, all on top of a full-time job.



Thanks for letting me share tonight's victory with you all. I know that spinal cord injury stories hit close to home for much of the moto community. She has started coming to the local tracks with me on the weekends, so if you see us around the DFW area come say hello!

You can follow her progress or send her your support at www.facebook.com/yvonnesparalysis
Tears to my eyes. Well done, truly well done.
randyvaldez1
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4/19/2016 2:31pm
wow, how amazing,a great inspiration for other individuals with life altering injuries.God Bless the both of you with the the inner strength and that she will continue to improve and have full mobility .
peelout
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4/19/2016 3:16pm
what an awesome thread, Andrew, thanks for the updates and the very inspiring thread. i would like to say props to you for sticking by your girlfriend through such a life-changing experience. you guys both seem like amazing people and i wish you nothing but the best. keep us updated and i'll be following your journey.

cheers bro
Mini Elsinore
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4/19/2016 6:01pm Edited Date/Time 4/19/2016 6:01pm
Any troubles I have just blew away with the wind.
What an inspiration you both are!! Charge on, pretty lady!
KTMShane699
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4/19/2016 10:40pm
Reading this thread again brought it right back to the front of my mind like when it was first posted. I'm beyond glad to see that the success both of you have shared in recovery has continued. You guys have been enjoying so much of life that people without your situation miss out on. That says something about both of you. You two are awesome and make a phenomenal team.

I have to agree with Peelout about the credit you deserve. The vast majority of people would have found a reason to get out after a life changing injury like that. Instead, you have embraced her and the process of recovering while committing to her in ways you guys never imagined. Most will never understand the commitment you two share with each other. If you guys are ever in Connecticut, a night out for dinner is on my wife and I.

Keep up the good work. Both of you.
sumdood
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4/19/2016 10:42pm
Thank you for the update ! Prayers, positive thoughts, whatever you want to call them sent out to her for continued improvement. Really makes you look at all the trivial bs we can get so wrapped up in on a day to day basis. Wishing nothing but the best (for both of you) She has more strength and determination than I can even imagine, keep charging !
Andrew337
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4/20/2016 12:41pm
colintrax wrote:
Has she tried one of those steering wheel balls? Might help her with steering. Anyways glad to see her having fun! I follow her Facebook recovery...
Has she tried one of those steering wheel balls? Might help her with steering.
Anyways glad to see her having fun! I follow her Facebook recovery page and didn't see anything about autocross.
Also you gotta show us some videos of the wheelchair rugby. That just sounds cool af
A lot of people ask if she has tried one of those "suicide knobs" but she just hasn't been interested in them. She would rather have hand controls that let her use both hands on the wheel more of the time and allow her to use the paddle shifters on the steering wheel, so that's what I'm working on now. It's been a slow project, but I finally have 90% of it designed, materials purchased, and am now fabricating and installing parts when I have time. She's particular about what she wants, so it has been an engineering challenge and we'll see if it's what she hoped for!

Thanks for the kind words, everyone. Yvonne and I make a great team, and honestly the injury hasn't put as much stress on our relationship as most would expect, she's the same person she has always been and we're there for each other 100%. I know not all relationships survive after something like this, but she's a keeper.
ocscottie
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4/21/2016 8:46am
Andrew337 wrote:
Thanks, everyone. We've been struggling to repeat the same success on the spin bike since the first video I posted, but a couple days ago she...
Thanks, everyone. We've been struggling to repeat the same success on the spin bike since the first video I posted, but a couple days ago she managed to do 5-8 complete revolutions in a row, all on her own, and she did that 3 times. She also had a good day at the recovery gym on Monday, she was able to do a full knee extension completely unassisted with her left leg. Her right leg, did about 1/4 of extension. Sometimes things work better than other times, everything is constantly changing. She may be able to do something one day and not the next. We just hope things are trending towards working more often.

Something that's always interesting is when we are out in public and people ask her about her injury. She has no problem talking about what happened to her or what her injury is, she's always willing to answer anyone's questions. Some people obviously have known someone with a spinal cord injury and strike up a conversation with her. Others will ask something random like, "What's wrong with your foot?" and you're a little disappointed about how little they know about the severity of spinal cord injuries. But everyone always means well and is genuine and we appreciate their willingness to ask and learn.



Andrew, your last paragraph made me think back...to 1985 when i first got hurt and it is amazing how much things have changed. I remember having to worry about going out if where i was going was going to be accessible or not, hell curbs were not even cut back then! and in order to get released from the hospital you had to learn how to jump up a curb.

Funny story....went to visit a girlfriend at Chico State and i got there late at night, she lived on the 7th floor of the dorms and get this...the elevators were out! lol Imagine 3 wasted chicks trying to cart my ass up 14 flights (2 per story) of stairs hahahah Ill never in my life forget that one.

Here is a good one...after the best race of my life in my Pilot, i had the crowd on its feet, after the moto i had a lady come over and ask me, "i dont want to get to personal but im really curious,. how does your wheelchair fit in there?" LOL Some people think my ass is bolted into this chair and cant fathom being able to do anything out it.

I got out of so many speeding tickets in my van, the cops were more interested in how my hand controls worked than the actual reason i was pulled over...good times.

Anyway....blows my mind how much things have changed. Before my injury i didnt know a single person in a chair, now you practically see someone daily while being out and about.

Tell your lady she is an amazing person and keep up the good fight! Always cool to talk to others and educate them on the whole SCI thing, hell ive been doing it for 31 years now.

colintrax
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4/21/2016 11:23am
colintrax wrote:
Has she tried one of those steering wheel balls? Might help her with steering. Anyways glad to see her having fun! I follow her Facebook recovery...
Has she tried one of those steering wheel balls? Might help her with steering.
Anyways glad to see her having fun! I follow her Facebook recovery page and didn't see anything about autocross.
Also you gotta show us some videos of the wheelchair rugby. That just sounds cool af
Andrew337 wrote:
A lot of people ask if she has tried one of those "suicide knobs" but she just hasn't been interested in them. She would rather have...
A lot of people ask if she has tried one of those "suicide knobs" but she just hasn't been interested in them. She would rather have hand controls that let her use both hands on the wheel more of the time and allow her to use the paddle shifters on the steering wheel, so that's what I'm working on now. It's been a slow project, but I finally have 90% of it designed, materials purchased, and am now fabricating and installing parts when I have time. She's particular about what she wants, so it has been an engineering challenge and we'll see if it's what she hoped for!

Thanks for the kind words, everyone. Yvonne and I make a great team, and honestly the injury hasn't put as much stress on our relationship as most would expect, she's the same person she has always been and we're there for each other 100%. I know not all relationships survive after something like this, but she's a keeper.
Sounds like youre basically done, but if you need any help with that project let me know. I'm not an engineer but I did make it to my senior year of engineering school lol and I'm a certified solidworks user.
My email is colintrax@yahoo.com

Her hands are gonna be awfully busy working paddle shifters, throttle, brake, and steering. Please post the go pro when you're done. Helluva lot more interesting then Ken Block.
Team Ideal
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4/21/2016 12:17pm
thanks for the update, pretty pumped for both of you, hope everything continues to improve and you enjoy your hobbies together. what a great thread.
4/29/2016 4:14pm
This thread is pretty awesome. You both sound like amazing, dedicated, hard working people!
kzizok
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4/29/2016 6:03pm
Ive followed this for a while. She is doing some amazing things. Dont sell yourself short, you have to be an exceptional person and deserve a lot of credit aa well. Awesome!
shanes
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4/30/2016 11:43pm
great news, good to read inspirational stories .

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