Brain cancer - Gliosarcoma

Gworm
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Monett, MO US
3/14/2024 4:41pm

Great to hear!

We’ll keep the prayers coming! 

LoudLove
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US
3/14/2024 5:01pm
Yz229 wrote:

He said I would succumb to this a long time ago. I should have clarified. Results came in yesterday and look very good.

Never been a better reason to get a new bike!  Or two…

2
Chance1216
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Location
Carson, CA US
3/14/2024 9:54pm
Yz229 wrote:

He said I would succumb to this a long time ago. I should have clarified. Results came in yesterday and look very good.

LoudLove wrote:

Never been a better reason to get a new bike!  Or two…

He’s got a bad ass YZ 315(?) that was raced at RBSR a few years ago. About as good as it gets lol. 

Yz229
Posts
448
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8/22/2018
Location
San Diego, CA US
7/3/2024 5:17pm

All,

Update on my brain cancer... Looks like my glio spread from where my surgery was to a new spot in another location near my ear. 

I have a new brain surgery coming up in a week, and then another round of radiation and lumastine and some other clinical trials in the next coming weeks.

Wish me luck on my next surgery!

16

The Shop

Chance1216
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8418
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Carson, CA US
7/3/2024 6:48pm
Yz229 wrote:
All, Update on my brain cancer... Looks like my glio spread from where my surgery was to a new spot in another location near my ear. ...

All,

Update on my brain cancer... Looks like my glio spread from where my surgery was to a new spot in another location near my ear. 

I have a new brain surgery coming up in a week, and then another round of radiation and lumastine and some other clinical trials in the next coming weeks.

Wish me luck on my next surgery!

Wishing you the best man. 

4
Gworm
Posts
2726
Joined
4/5/2017
Location
Monett, MO US
7/3/2024 6:58pm
Yz229 wrote:
All, Update on my brain cancer... Looks like my glio spread from where my surgery was to a new spot in another location near my ear. ...

All,

Update on my brain cancer... Looks like my glio spread from where my surgery was to a new spot in another location near my ear. 

I have a new brain surgery coming up in a week, and then another round of radiation and lumastine and some other clinical trials in the next coming weeks.

Wish me luck on my next surgery!

Praying for you. I was thinking about you a few days ago, wondering how you were doing. 
 

Good luck. 

3
e-wa
Posts
171
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12/18/2013
Location
Pasco, WA US
7/3/2024 7:04pm

Best of luck to you.

2
7/3/2024 7:07pm

Keeping you and your family in my prayers. Good energy and wishes sent your way. 

2
7/3/2024 7:12pm
Yz229 wrote:
All, Update on my brain cancer... Looks like my glio spread from where my surgery was to a new spot in another location near my ear. ...

All,

Update on my brain cancer... Looks like my glio spread from where my surgery was to a new spot in another location near my ear. 

I have a new brain surgery coming up in a week, and then another round of radiation and lumastine and some other clinical trials in the next coming weeks.

Wish me luck on my next surgery!

Yz229,

I'm just seeing this thread for the first time and I'm praying for you along with everyone else. If you don't mind me asking, what were your symptoms that made you start visiting the doctor before you were diagnosed?  Did you start getting severe headaches, nausea, or hearing loss?  Also, once you learned you had a tumor, how long after that did it take for the doctors to diagnose you with gliosarcoma?   Or, was it in early November that you learned about the tumor and the gliosarcoma?

It sounds like you had some good news not too long ago with good results.  Were you thinking you were in remission or were the doctors expecting this to move and sprout up in another area?

Stay strong bud, praying for you and your family.

4
VL13
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Location
Eagle Nest, NM US
7/3/2024 8:24pm
Yz229 wrote:
All, Update on my brain cancer... Looks like my glio spread from where my surgery was to a new spot in another location near my ear. ...

All,

Update on my brain cancer... Looks like my glio spread from where my surgery was to a new spot in another location near my ear. 

I have a new brain surgery coming up in a week, and then another round of radiation and lumastine and some other clinical trials in the next coming weeks.

Wish me luck on my next surgery!

Praying for a full recovery and strength. You’ve got this!

3
Yz229
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448
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Location
San Diego, CA US
7/3/2024 10:40pm
Yz229 wrote:
All, Update on my brain cancer... Looks like my glio spread from where my surgery was to a new spot in another location near my ear. ...

All,

Update on my brain cancer... Looks like my glio spread from where my surgery was to a new spot in another location near my ear. 

I have a new brain surgery coming up in a week, and then another round of radiation and lumastine and some other clinical trials in the next coming weeks.

Wish me luck on my next surgery!

Yz229, I'm just seeing this thread for the first time and I'm praying for you along with everyone else. If you don't mind me asking, what...

Yz229,

I'm just seeing this thread for the first time and I'm praying for you along with everyone else. If you don't mind me asking, what were your symptoms that made you start visiting the doctor before you were diagnosed?  Did you start getting severe headaches, nausea, or hearing loss?  Also, once you learned you had a tumor, how long after that did it take for the doctors to diagnose you with gliosarcoma?   Or, was it in early November that you learned about the tumor and the gliosarcoma?

It sounds like you had some good news not too long ago with good results.  Were you thinking you were in remission or were the doctors expecting this to move and sprout up in another area?

Stay strong bud, praying for you and your family.

Everything seemed fine for me, working at point Loma on November 6th. I drove to work, everything was fine. When I showed up at NIWC PAC, some strange things starting happening. Wasn't really sure what was going on. Everyone in front office was thinking I was having a stroke (super fit at 38). Hopped in ambulance, couldn't think of my name, wife's name... Anyone. They finally brought me to USCD, they injected contrast for my quick CT. Turned out I had a giant tumor, but really didn't have anything strange going on. 

After my surgery, one of the best surgeon removed it. But also had 7 weeks of intense radiation, chemo with 2.33x dose since February. I just found out 2 weeks ago tumor has spread. 

I have some good ideas on how to fix this and thrive. Especially with carnivore diet and fasting. 

Let me know if you want to know anything. I have a brain surgery I believe on the 17th. But would love to explain some more about this situation 

 

4
DaveB771
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333
Joined
7/27/2011
Location
Minneapolis, MN US
7/4/2024 7:35am Edited Date/Time 7/4/2024 7:37am
Yz229 wrote:
All, Update on my brain cancer... Looks like my glio spread from where my surgery was to a new spot in another location near my ear. ...

All,

Update on my brain cancer... Looks like my glio spread from where my surgery was to a new spot in another location near my ear. 

I have a new brain surgery coming up in a week, and then another round of radiation and lumastine and some other clinical trials in the next coming weeks.

Wish me luck on my next surgery!

Best wishes sent your way. I hope you have as good an outcome as I have, so far. 

7/4/2024 8:05am
Yz229 wrote:
All, Update on my brain cancer... Looks like my glio spread from where my surgery was to a new spot in another location near my ear. ...

All,

Update on my brain cancer... Looks like my glio spread from where my surgery was to a new spot in another location near my ear. 

I have a new brain surgery coming up in a week, and then another round of radiation and lumastine and some other clinical trials in the next coming weeks.

Wish me luck on my next surgery!

Yz229, I'm just seeing this thread for the first time and I'm praying for you along with everyone else. If you don't mind me asking, what...

Yz229,

I'm just seeing this thread for the first time and I'm praying for you along with everyone else. If you don't mind me asking, what were your symptoms that made you start visiting the doctor before you were diagnosed?  Did you start getting severe headaches, nausea, or hearing loss?  Also, once you learned you had a tumor, how long after that did it take for the doctors to diagnose you with gliosarcoma?   Or, was it in early November that you learned about the tumor and the gliosarcoma?

It sounds like you had some good news not too long ago with good results.  Were you thinking you were in remission or were the doctors expecting this to move and sprout up in another area?

Stay strong bud, praying for you and your family.

Yz229 wrote:
Everything seemed fine for me, working at point Loma on November 6th. I drove to work, everything was fine. When I showed up at NIWC PAC...

Everything seemed fine for me, working at point Loma on November 6th. I drove to work, everything was fine. When I showed up at NIWC PAC, some strange things starting happening. Wasn't really sure what was going on. Everyone in front office was thinking I was having a stroke (super fit at 38). Hopped in ambulance, couldn't think of my name, wife's name... Anyone. They finally brought me to USCD, they injected contrast for my quick CT. Turned out I had a giant tumor, but really didn't have anything strange going on. 

After my surgery, one of the best surgeon removed it. But also had 7 weeks of intense radiation, chemo with 2.33x dose since February. I just found out 2 weeks ago tumor has spread. 

I have some good ideas on how to fix this and thrive. Especially with carnivore diet and fasting. 

Let me know if you want to know anything. I have a brain surgery I believe on the 17th. But would love to explain some more about this situation 

 

Wow man that is very scary shit.  Absolutely zero symptoms and then just one day boom, completely out of the blue, it surfaces. I was thinking maybe you would have experienced some headaches or something before you went in.   When you say giant would that be about the size of a golf ball?  From the date of your original CT scan, how long after that was your first surgery?

Best wishes on this next operation, we're praying for you.  Please keep us updated when you can. I appreciate all that you've shared with us.

Yz229
Posts
448
Joined
8/22/2018
Location
San Diego, CA US
7/5/2024 11:27am
Yz229, I'm just seeing this thread for the first time and I'm praying for you along with everyone else. If you don't mind me asking, what...

Yz229,

I'm just seeing this thread for the first time and I'm praying for you along with everyone else. If you don't mind me asking, what were your symptoms that made you start visiting the doctor before you were diagnosed?  Did you start getting severe headaches, nausea, or hearing loss?  Also, once you learned you had a tumor, how long after that did it take for the doctors to diagnose you with gliosarcoma?   Or, was it in early November that you learned about the tumor and the gliosarcoma?

It sounds like you had some good news not too long ago with good results.  Were you thinking you were in remission or were the doctors expecting this to move and sprout up in another area?

Stay strong bud, praying for you and your family.

Yz229 wrote:
Everything seemed fine for me, working at point Loma on November 6th. I drove to work, everything was fine. When I showed up at NIWC PAC...

Everything seemed fine for me, working at point Loma on November 6th. I drove to work, everything was fine. When I showed up at NIWC PAC, some strange things starting happening. Wasn't really sure what was going on. Everyone in front office was thinking I was having a stroke (super fit at 38). Hopped in ambulance, couldn't think of my name, wife's name... Anyone. They finally brought me to USCD, they injected contrast for my quick CT. Turned out I had a giant tumor, but really didn't have anything strange going on. 

After my surgery, one of the best surgeon removed it. But also had 7 weeks of intense radiation, chemo with 2.33x dose since February. I just found out 2 weeks ago tumor has spread. 

I have some good ideas on how to fix this and thrive. Especially with carnivore diet and fasting. 

Let me know if you want to know anything. I have a brain surgery I believe on the 17th. But would love to explain some more about this situation 

 

Wow man that is very scary shit.  Absolutely zero symptoms and then just one day boom, completely out of the blue, it surfaces. I was thinking...

Wow man that is very scary shit.  Absolutely zero symptoms and then just one day boom, completely out of the blue, it surfaces. I was thinking maybe you would have experienced some headaches or something before you went in.   When you say giant would that be about the size of a golf ball?  From the date of your original CT scan, how long after that was your first surgery?

Best wishes on this next operation, we're praying for you.  Please keep us updated when you can. I appreciate all that you've shared with us.

It was pretty nuts. I know a lot of people have symptoms before hand, headaches especially. I had no symptoms until they took me to UCSD. Turns out I had midline shift in my brain. I'll see if I can upload a picture here for you to see my inititial tumor back on Nov 6, 2023. I think my initial tumor back then was a little smaller then a golf ball.

The new one that moved in my left temporal started growing which I believe is only 1cm at this point. Look's like I'll have another brain surgery on July 17th.

 

Yz229
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Location
San Diego, CA US
7/5/2024 11:30am

image-20240705113023-1

TG130
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1246
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Location
US
7/5/2024 2:50pm

All the best to you. Good luck.

7/5/2024 9:17pm

Just know that you have the best team working on you. Your outcome is not determined by statistics. If you go carnivore, make sure to buy grass fed beef. We've picked up some tasty recipes from the "healing foods kitchen" at Moores. Are they able to remove it through just a small hole? Best of luck brother!

TM

G-man
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8976
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Location
Mesa, AZ US
7/5/2024 9:53pm

Oh man, sorry to hear about this and what you're going through.

I can kind of relate as my wife has been battling stage 4 colon cancer for four years, she just had more surgery two days ago after being in extreme pain. 

Best of Luck to You. 

alphado
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4059
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Location
Erie, PA US
7/9/2024 11:01am

Good luck again!

Hudweiser9
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Location
Ormond Beach, FL US
7/9/2024 3:41pm
Yz229 wrote:
All, Update on my brain cancer... Looks like my glio spread from where my surgery was to a new spot in another location near my ear. ...

All,

Update on my brain cancer... Looks like my glio spread from where my surgery was to a new spot in another location near my ear. 

I have a new brain surgery coming up in a week, and then another round of radiation and lumastine and some other clinical trials in the next coming weeks.

Wish me luck on my next surgery!

Damn, sorry to hear that... Hopefully they can remove it successfully and it will be done for good! Keep fighting, lean on your support system of friends and family. Sending prayers for a successful surgery and speedy recovery.

2
Yz229
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448
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Location
San Diego, CA US
7/21/2024 8:29pm

 This is the strongest anyone has been. I came in for surgery, 10-12 hours up until Wednesday about 5 PM. I got out of hospital about 1 PM Surgery on Friday. Not bad! Still staying as strong as anyone with the same gliosarcoma, but doing such what well being incredibly stronger keep in health. Completely deaf on left side in my ear for now. Doing excellent already!

 

IMG 2123.jpeg?VersionId=An01MlEQ3Y
14
SEEMEFIRST
Posts
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Location
Arlington, TX US
7/22/2024 5:13am

Hang in there, buddy!

Continued prayers sent Y'alls way!

1
shuggs
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1781
Joined
8/6/2008
Location
Dunfermline GB
7/22/2024 5:49am

Jeez what a battle you have had, sending prayers and hope you stay mentally strong - m/in/law said that she had to but needed to focus on something positive for aim for, she chose great grandson and was determined to see him grow up.  Now 14yold special boy gets spoiled.

Fingers crossed for positive results for you 🙏

1
7/22/2024 6:02am

Tyler, most people have no idea what it means to some of us when they ask "how's your day" and our answer is, "well, I'm here". And while they understand it may not be going so well that day, it's still a great fucking day because we're still here. Stay strong brother! On a side note, how original is that? You now have a big question mark on the side of your head! Tyler's new tag line, "question everything"

TM

1
Hudweiser9
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Location
Ormond Beach, FL US
7/22/2024 9:26am

Hey Tyler, keep up the positive thoughts. I hope the surgery will successfully keep it from spreading again. Sending prayers to you and your support system. We tend to forget how hard it can be on them as well. I know I did sometimes while going thru treatment for my cancer. Get well soon and keep us posted on your progress. Remember, chicks dig scars! 

DaveB771
Posts
333
Joined
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Location
Minneapolis, MN US
7/22/2024 4:33pm
Yz229 wrote:
 This is the strongest anyone has been. I came in for surgery, 10-12 hours up until Wednesday about 5 PM. I got out of hospital about...

 This is the strongest anyone has been. I came in for surgery, 10-12 hours up until Wednesday about 5 PM. I got out of hospital about 1 PM Surgery on Friday. Not bad! Still staying as strong as anyone with the same gliosarcoma, but doing such what well being incredibly stronger keep in health. Completely deaf on left side in my ear for now. Doing excellent already!

 

IMG 2123.jpeg?VersionId=An01MlEQ3Y

That’s great news!

az2u
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Location
CA US
7/24/2024 12:19pm

Keep fighting Yz229. Best wishes.

Yz229
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448
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Location
San Diego, CA US
10/14/2024 8:53am Edited Date/Time 10/14/2024 9:02am

Hello my good friends,

Everything going well! Working with Dr. Thomas Seyfried on any type of sickness, obesity, type 2 diabetes, ALL cancer. He is very famous on YouTube for great videos. I've been very healthy with working out. Down from 210lbs in July 10th to 165 at this point with very low fat, but great muscle. Also on over 4 months of carnivore diet with 4 times tallow fat and 1 time protein to reduce glucose and glutamine to kill tumors/camcer. My blood glucose goes low to 52 and over 3 ketosis (GKI below 1 which is very effective!). Doing all I can to defeat brain cancer! Was supposed to have only 12 months of survival. I'm at 12 months now with my brain looking great!

I love my family and little boys! They have been into their Stacycs, so happy to watch them ride. I still have my YZ315 stroker posted on Vital build threads, as well as my 1998 YZ400F and 2020 YZ450F. Hopefully I can go riding with my little boys in November!

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26
10/14/2024 9:21am

Excellent news Yz229!! Great picture of your fam. I wish you continued progress.

F#CK Cancer.  I appreciate every day, regardless of what it brings.  I haven't gone through anything as extreme as you. Every clean blood test I get is a gift (4 years running).

 

Can't wait to see some pictures of you riding with the boys!

4
10/14/2024 9:58am

You look great man!

I admire you for putting in the work to take your diet in a direction that you believe will help you. You certainly have some motivation in the wonderful family you have.

Best of luck and keep us updated

3

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