Very anxious day......

8/17/2023 10:10pm

Great to hear the positive updates Aplman and upwards on onwards from here. 

2
sumdood
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San Clemente, CA, USA
Fantasy
8/17/2023 10:15pm

Prayers and strength sent for continued progress. Hang in there APLMAN 

2
Falcon
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12435
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Menifee, CA, USA
8/18/2023 7:00am

This is one jackwagon who is happy to hear she's doing OK. Best wishes for a more durable repair this time!

1
vet323
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3604
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Location
Lead, SD, USA
8/18/2023 9:26am

Best of luck to you both-she must be a tough lady!

The Shop

DaveB771
Posts
335
Joined
7/27/2011
Location
Minneapolis, MN, USA
8/18/2023 9:48am
APLMAN99 wrote:
Overall a really good day today. Less pain meds and she was able to walk a little bit (didn’t leave the room, though!).  She’s able to...

Overall a really good day today. Less pain meds and she was able to walk a little bit (didn’t leave the room, though!). 

She’s able to sit up in a chair for a couple hours at a time and her lungs are staying clear and strong. She got moved out of ICU just after 6PM so after getting her settled in her new room I came home to eat, sleep, and head back first thing tomorrow. Sounds like she is fully on track for being sent home Monday still, so I think that I’ll be enjoying hospital food lunches for a few more days!  
 

 

Very good news. With any luck, your wife will be one of the patients who puts a smile on the faces of the doctors and nurses.

8/23/2023 6:59am

Hey APL, I was just thinking about this. Did she end up being released on schedule; back home and recovering by now, I hope?

APLMAN99
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12549
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Location
Tualatin, OR, USA
Fantasy
8/23/2023 8:40am

Hey APL, I was just thinking about this. Did she end up being released on schedule; back home and recovering by now, I hope?

We’re still in the hospital, hoping for discharge today or tomorrow. This is day 9.

The surgery itself was very successful, she’s up and around and feels much better than she expected to 4 or 5 days ago, but they are having a hard time getting her level of blood thinner up to the proper level. I’m not sure what the units of measurement are, but the ideal target is 2.0 and this morning she was at a 1.6. If she gets up to 1.8, they feel like it’s safe to go home with monitoring every 48 hours for a couple of weeks. 

She’s definitely ready to get home!

 

 

8
plowboy
Posts
14415
Joined
1/3/2010
Location
Norwich, KS, USA
8/23/2023 9:52am

Hey APL, I was just thinking about this. Did she end up being released on schedule; back home and recovering by now, I hope?

APLMAN99 wrote:
We’re still in the hospital, hoping for discharge today or tomorrow. This is day 9. The surgery itself was very successful, she’s up and around and...

We’re still in the hospital, hoping for discharge today or tomorrow. This is day 9.

The surgery itself was very successful, she’s up and around and feels much better than she expected to 4 or 5 days ago, but they are having a hard time getting her level of blood thinner up to the proper level. I’m not sure what the units of measurement are, but the ideal target is 2.0 and this morning she was at a 1.6. If she gets up to 1.8, they feel like it’s safe to go home with monitoring every 48 hours for a couple of weeks. 

She’s definitely ready to get home!

 

 

Great news.Smile

1
SEEMEFIRST
Posts
13849
Joined
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Location
Arlington, TX, USA
8/23/2023 10:18am

Happy to hear the positive news. 

1
8/23/2023 12:45pm

Hey APL, I was just thinking about this. Did she end up being released on schedule; back home and recovering by now, I hope?

APLMAN99 wrote:
We’re still in the hospital, hoping for discharge today or tomorrow. This is day 9. The surgery itself was very successful, she’s up and around and...

We’re still in the hospital, hoping for discharge today or tomorrow. This is day 9.

The surgery itself was very successful, she’s up and around and feels much better than she expected to 4 or 5 days ago, but they are having a hard time getting her level of blood thinner up to the proper level. I’m not sure what the units of measurement are, but the ideal target is 2.0 and this morning she was at a 1.6. If she gets up to 1.8, they feel like it’s safe to go home with monitoring every 48 hours for a couple of weeks. 

She’s definitely ready to get home!

 

 

Are they using the coumadin or the lovenox? The coumadin takes a while to see results while the lovenox is more instantaneous.

Lovenox is injections trice daily. They don't do that long term though.

And yes 2 is a good #. There's also a newer product that I'm not familiar with, where you don't have to worry about what you eat.

I'm sure you've been educated on all this stuff before though.

APLMAN99
Posts
12549
Joined
4/1/2008
Location
Tualatin, OR, USA
Fantasy
8/23/2023 5:30pm

Hey APL, I was just thinking about this. Did she end up being released on schedule; back home and recovering by now, I hope?

APLMAN99 wrote:
We’re still in the hospital, hoping for discharge today or tomorrow. This is day 9. The surgery itself was very successful, she’s up and around and...

We’re still in the hospital, hoping for discharge today or tomorrow. This is day 9.

The surgery itself was very successful, she’s up and around and feels much better than she expected to 4 or 5 days ago, but they are having a hard time getting her level of blood thinner up to the proper level. I’m not sure what the units of measurement are, but the ideal target is 2.0 and this morning she was at a 1.6. If she gets up to 1.8, they feel like it’s safe to go home with monitoring every 48 hours for a couple of weeks. 

She’s definitely ready to get home!

 

 

ToolMaker wrote:
Are they using the coumadin or the lovenox? The coumadin takes a while to see results while the lovenox is more instantaneous. Lovenox is injections trice...

Are they using the coumadin or the lovenox? The coumadin takes a while to see results while the lovenox is more instantaneous.

Lovenox is injections trice daily. They don't do that long term though.

And yes 2 is a good #. There's also a newer product that I'm not familiar with, where you don't have to worry about what you eat.

I'm sure you've been educated on all this stuff before though.

Discharged earlier today, daily blood tests to monitor the Coumadin for the first couple weeks it sounds like. The head pharmacist at the hospital is a high school friend who gave us a decent initial rundown on the Coumadin but said that everyone metabolizes it differently so to call him 24/7 if we had questions and couldn’t get hold of the anti coagulation folks. 

4
9/24/2023 7:40am

            Good Morning Mr. Aplman99, just a quick note to wish you both all the best, and wondering how things are progressing. 

APLMAN99
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12549
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Location
Tualatin, OR, USA
Fantasy
9/24/2023 2:24pm
            Good Morning Mr. Aplman99, just a quick note to wish you both all the best, and wondering how things are...

            Good Morning Mr. Aplman99, just a quick note to wish you both all the best, and wondering how things are progressing. 

Thanks OSF, healing is going well and she is feeling much better. Still trying to dial in blood thinner levels, but that will always be an ongoing process. 

3
swordfish
Posts
1950
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Somewhere, AB, CA
9/24/2023 4:11pm

That’s great news. 

APLMAN99
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Tualatin, OR, USA
Fantasy
11/27/2023 3:01pm

Well, the wife fully recovered from her stroke, her open heart surgery to replace her previous replacement heart valve was very successful, and a couple weeks ago they finally got around to looking at some swollen lymph nodes that they had found when she had her stroke. 

Turns out, both nodes that they biopsied were cancerous. I was actually still in Texas when she got the test results, but was able to fly up to Washington the next day and have been here for a little over a week. First meeting with the oncologist tomorrow but we are going to have her moved down to Texas a little earlier than we originally planned so she can do her treatment down there. 

One lucky thing is that where she will be working is right across the street from the Baylor University Cancer Center, and we’re told that it’s one of the best in the country. Hopefully that’s true, and this is just another hurdle to get past for her. 

She’s infinitely stronger than I am, for sure. 


 

3
11/27/2023 3:41pm
APLMAN99 wrote:
Well, the wife fully recovered from her stroke, her open heart surgery to replace her previous replacement heart valve was very successful, and a couple weeks...

Well, the wife fully recovered from her stroke, her open heart surgery to replace her previous replacement heart valve was very successful, and a couple weeks ago they finally got around to looking at some swollen lymph nodes that they had found when she had her stroke. 

Turns out, both nodes that they biopsied were cancerous. I was actually still in Texas when she got the test results, but was able to fly up to Washington the next day and have been here for a little over a week. First meeting with the oncologist tomorrow but we are going to have her moved down to Texas a little earlier than we originally planned so she can do her treatment down there. 

One lucky thing is that where she will be working is right across the street from the Baylor University Cancer Center, and we’re told that it’s one of the best in the country. Hopefully that’s true, and this is just another hurdle to get past for her. 

She’s infinitely stronger than I am, for sure. 


 

So sorry to hear that Mr. Apple,

That's so fucked up! I hate hearing when people are DXed with this terrible disease. I would encourage you to get an opinion at MD Anderson since you're in TX. One of the top 3 in the country for cancer centers. I don't know how many people that could have had different outcomes with a top tier doctor.

TM

Magoofan
Posts
10401
Joined
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Location
Shadow Glen (for those who remember), CA, USA
11/27/2023 4:36pm
APLMAN99 wrote:
Well, the wife fully recovered from her stroke, her open heart surgery to replace her previous replacement heart valve was very successful, and a couple weeks...

Well, the wife fully recovered from her stroke, her open heart surgery to replace her previous replacement heart valve was very successful, and a couple weeks ago they finally got around to looking at some swollen lymph nodes that they had found when she had her stroke. 

Turns out, both nodes that they biopsied were cancerous. I was actually still in Texas when she got the test results, but was able to fly up to Washington the next day and have been here for a little over a week. First meeting with the oncologist tomorrow but we are going to have her moved down to Texas a little earlier than we originally planned so she can do her treatment down there. 

One lucky thing is that where she will be working is right across the street from the Baylor University Cancer Center, and we’re told that it’s one of the best in the country. Hopefully that’s true, and this is just another hurdle to get past for her. 

She’s infinitely stronger than I am, for sure. 


 

Damn man.   One thing after another.    Sounds like she's got some skilled docs and that is so important.  My wife had cancer 10 years ago, she is cancer free today.   

Prayers for your wife to have continued skilled medical treatment and successful outcomes (and strength, peace for you in being by her side). 

 

1
burn1986
Posts
12246
Joined
4/16/2010
Location
bossier city, LA, USA
11/27/2023 4:39pm
APLMAN99 wrote:
Thanks, everyone.  They took her to surgery at about 7 AM, she got to her recovery room in ICU about 4:30 PM. Quite a bit longer...

Thanks, everyone. 

They took her to surgery at about 7 AM, she got to her recovery room in ICU about 4:30 PM. Quite a bit longer than I expected but the nurse kept updating every hour or so and that definitely helped lower the stress. Being the second time, it took a while to make sure that they got every bit of the old tissue valve and that they sized the new one correctly. Doctor said it’s working perfectly but that the old one was probably farther gone than what they had originally thought so it’s a good thing that we didn’t wait or anything.  She had thought of waiting until we decide about the potential Texas move and a trip to look things over down there.  Glad we didn’t do that!!!

She’s still pretty zoned out and it sounds like they are intentionally bringing her back up to speed slower than the last time, but she’s already been able to lose the breathing tube and such.


Time for some sleep, didn’t get any to speak of last night!

Praying for you man. Sorry y’all are having to go through all that.

Gworm
Posts
2790
Joined
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Location
Monett, MO, USA
11/27/2023 5:45pm

I’m praying for you as well. 

1
11/28/2023 9:34am
APLMAN99 wrote:
Well, the wife fully recovered from her stroke, her open heart surgery to replace her previous replacement heart valve was very successful, and a couple weeks...

Well, the wife fully recovered from her stroke, her open heart surgery to replace her previous replacement heart valve was very successful, and a couple weeks ago they finally got around to looking at some swollen lymph nodes that they had found when she had her stroke. 

Turns out, both nodes that they biopsied were cancerous. I was actually still in Texas when she got the test results, but was able to fly up to Washington the next day and have been here for a little over a week. First meeting with the oncologist tomorrow but we are going to have her moved down to Texas a little earlier than we originally planned so she can do her treatment down there. 

One lucky thing is that where she will be working is right across the street from the Baylor University Cancer Center, and we’re told that it’s one of the best in the country. Hopefully that’s true, and this is just another hurdle to get past for her. 

She’s infinitely stronger than I am, for sure. 


 

Sending you the most positive vibes. 
 

11/28/2023 9:38am
APLMAN99 wrote:
Well, the wife fully recovered from her stroke, her open heart surgery to replace her previous replacement heart valve was very successful, and a couple weeks...

Well, the wife fully recovered from her stroke, her open heart surgery to replace her previous replacement heart valve was very successful, and a couple weeks ago they finally got around to looking at some swollen lymph nodes that they had found when she had her stroke. 

Turns out, both nodes that they biopsied were cancerous. I was actually still in Texas when she got the test results, but was able to fly up to Washington the next day and have been here for a little over a week. First meeting with the oncologist tomorrow but we are going to have her moved down to Texas a little earlier than we originally planned so she can do her treatment down there. 

One lucky thing is that where she will be working is right across the street from the Baylor University Cancer Center, and we’re told that it’s one of the best in the country. Hopefully that’s true, and this is just another hurdle to get past for her. 

She’s infinitely stronger than I am, for sure. 


 

Magoofan wrote:
Damn man.   One thing after another.    Sounds like she's got some skilled docs and that is so important.  My wife had cancer 10 years ago...

Damn man.   One thing after another.    Sounds like she's got some skilled docs and that is so important.  My wife had cancer 10 years ago, she is cancer free today.   

Prayers for your wife to have continued skilled medical treatment and successful outcomes (and strength, peace for you in being by her side). 

 

Mine has been clear for just over a year. She had a follow up oncology appt last week. 
It’s a stressful time. 
Hoping ALPMAN has all the support he and his wife needs. 
Some solid results out there with antivirals worth looking into. I have a few friends that had great outcomes with the treatment. 

2
11/28/2023 10:59am
APLMAN99 wrote:
Well, the wife fully recovered from her stroke, her open heart surgery to replace her previous replacement heart valve was very successful, and a couple weeks...

Well, the wife fully recovered from her stroke, her open heart surgery to replace her previous replacement heart valve was very successful, and a couple weeks ago they finally got around to looking at some swollen lymph nodes that they had found when she had her stroke. 

Turns out, both nodes that they biopsied were cancerous. I was actually still in Texas when she got the test results, but was able to fly up to Washington the next day and have been here for a little over a week. First meeting with the oncologist tomorrow but we are going to have her moved down to Texas a little earlier than we originally planned so she can do her treatment down there. 

One lucky thing is that where she will be working is right across the street from the Baylor University Cancer Center, and we’re told that it’s one of the best in the country. Hopefully that’s true, and this is just another hurdle to get past for her. 

She’s infinitely stronger than I am, for sure. 


 

Magoofan wrote:
Damn man.   One thing after another.    Sounds like she's got some skilled docs and that is so important.  My wife had cancer 10 years ago...

Damn man.   One thing after another.    Sounds like she's got some skilled docs and that is so important.  My wife had cancer 10 years ago, she is cancer free today.   

Prayers for your wife to have continued skilled medical treatment and successful outcomes (and strength, peace for you in being by her side). 

 

Paperclip wrote:
Mine has been clear for just over a year. She had a follow up oncology appt last week.  It’s a stressful time.  Hoping ALPMAN has all...

Mine has been clear for just over a year. She had a follow up oncology appt last week. 
It’s a stressful time. 
Hoping ALPMAN has all the support he and his wife needs. 
Some solid results out there with antivirals worth looking into. I have a few friends that had great outcomes with the treatment. 

What kind of cancer do they treat with antivirals? Is it just an additive to the regiment or does the antiviral actually attack/prevent growth/cause the cancer to die(create an apoptosis effect).

11/28/2023 11:30am
Magoofan wrote:
Damn man.   One thing after another.    Sounds like she's got some skilled docs and that is so important.  My wife had cancer 10 years ago...

Damn man.   One thing after another.    Sounds like she's got some skilled docs and that is so important.  My wife had cancer 10 years ago, she is cancer free today.   

Prayers for your wife to have continued skilled medical treatment and successful outcomes (and strength, peace for you in being by her side). 

 

Paperclip wrote:
Mine has been clear for just over a year. She had a follow up oncology appt last week.  It’s a stressful time.  Hoping ALPMAN has all...

Mine has been clear for just over a year. She had a follow up oncology appt last week. 
It’s a stressful time. 
Hoping ALPMAN has all the support he and his wife needs. 
Some solid results out there with antivirals worth looking into. I have a few friends that had great outcomes with the treatment. 

ToolMaker wrote:
What kind of cancer do they treat with antivirals? Is it just an additive to the regiment or does the antiviral actually attack/prevent growth/cause the cancer...

What kind of cancer do they treat with antivirals? Is it just an additive to the regiment or does the antiviral actually attack/prevent growth/cause the cancer to die(create an apoptosis effect).

It’s a pretty heated debate on this treatment right now from the traditionalists. It can be used both ways. I know people that supplemented with radiation and or chemo and others that centered treatment around the antiviral. I believe in most cases mainstream, people are using a combo of conventional and antiviral. Quite a few different cancers are being treated this way including lung cancer, blood cancers, breast and others. 

11/28/2023 1:04pm
Paperclip wrote:
It’s a pretty heated debate on this treatment right now from the traditionalists. It can be used both ways. I know people that supplemented with radiation...

It’s a pretty heated debate on this treatment right now from the traditionalists. It can be used both ways. I know people that supplemented with radiation and or chemo and others that centered treatment around the antiviral. I believe in most cases mainstream, people are using a combo of conventional and antiviral. Quite a few different cancers are being treated this way including lung cancer, blood cancers, breast and others. 

I've heard of in conjunction with however not to affect the cancer but to help the body because your immunity is shit. Do you have any sites that might explain that?

Thanks

11/28/2023 1:07pm
Paperclip wrote:
Mine has been clear for just over a year. She had a follow up oncology appt last week.  It’s a stressful time.  Hoping ALPMAN has all...

Mine has been clear for just over a year. She had a follow up oncology appt last week. 
It’s a stressful time. 
Hoping ALPMAN has all the support he and his wife needs. 
Some solid results out there with antivirals worth looking into. I have a few friends that had great outcomes with the treatment. 

ToolMaker wrote:
What kind of cancer do they treat with antivirals? Is it just an additive to the regiment or does the antiviral actually attack/prevent growth/cause the cancer...

What kind of cancer do they treat with antivirals? Is it just an additive to the regiment or does the antiviral actually attack/prevent growth/cause the cancer to die(create an apoptosis effect).

Paperclip wrote:
It’s a pretty heated debate on this treatment right now from the traditionalists. It can be used both ways. I know people that supplemented with radiation...

It’s a pretty heated debate on this treatment right now from the traditionalists. It can be used both ways. I know people that supplemented with radiation and or chemo and others that centered treatment around the antiviral. I believe in most cases mainstream, people are using a combo of conventional and antiviral. Quite a few different cancers are being treated this way including lung cancer, blood cancers, breast and others. 

APLMAN99
Posts
12549
Joined
4/1/2008
Location
Tualatin, OR, USA
Fantasy
11/28/2023 1:31pm

Well, her first oncology appointment today wasn’t super encouraging.  Stage IV mullerian, but the CT scan didn’t reveal the source tumor so there’s at least some chance that it is very small and it may respond to treatment. They are testing the biopsies to find some genetic information to help decide on the treatment plan, and the local oncologist has already spoken to a Baylor oncologist so the medical handoff should be pretty seamless. 

I have to head back down to Dallas tonight but unfortunately she won’t be able to fly down until next Tuesday. It’s going to be a long week, for sure……

2
11/28/2023 1:57pm

I've never even heard of that. That's a relatively new thing they do now (genetic testing). It used to be there was a standard treatment and everyone got the same thing. Now they dna test and adjust/change the treatment. A good friend of mine had pancreatic cancer stage 4, and it turned out that the doc wanted a breast cancer treatment and it worked the best they had ever seen. He will probably get published. Off to the PET machine to see if they can find the tumor that way? Did the doc discuss what type of treatments are available? Or is that dependent on where the tumor is?

Piston Slap
Posts
1985
Joined
7/2/2013
Location
Stillwater, OK, USA
11/28/2023 2:23pm

I'm sorry to hear that Apl.

Baylor is a good place. 

From my experience, MD Anderson gave us a few more years with my Paw.

I pray for great outcomes for your wife.

Jimmy

 

11/28/2023 3:19pm

I'd like to add one thing for now. This beginning of a long difficult journey. Having been on both sides of the fence. On your side you'll be worried and want to do as much as possible. Don't ask her if you can do something for her or if there's anything you can get/do what ever. When you want to do something. Be specific. Honey, can I get you XYZ? She has a lot on her mind and thinking of what she wants is just clutter. On her side of the fence, she'll not want to be a burden and will not give you an answer to an open question. A yes/no answer is much easier. I know this sounds petty but it's real.

Prayers for you brother! I always plagiarize Pastor Mark in times like this, condensed version,

Whether it be through your intervention or the treatments and technology you allowed us to develop...

3
DaveB771
Posts
335
Joined
7/27/2011
Location
Minneapolis, MN, USA
11/30/2023 7:07pm
ToolMaker wrote:
I've never even heard of that. That's a relatively new thing they do now (genetic testing). It used to be there was a standard treatment and...

I've never even heard of that. That's a relatively new thing they do now (genetic testing). It used to be there was a standard treatment and everyone got the same thing. Now they dna test and adjust/change the treatment. A good friend of mine had pancreatic cancer stage 4, and it turned out that the doc wanted a breast cancer treatment and it worked the best they had ever seen. He will probably get published. Off to the PET machine to see if they can find the tumor that way? Did the doc discuss what type of treatments are available? Or is that dependent on where the tumor is?

They did a genetic test on my squamous cell cancer that my insurance initially didn’t want to pay for before I started immunotherapy. Lucky for me they picked up the tab and so far (knock wood) it’s working. 

6

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