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Sorry APLMAN99, sending strength and positive thoughts out to her and you as well.
How will they monitor the effectiveness of the treatment?
Sorry to hear about this Kevin, I'm all too familiar with what you're going to be going through unfortunately as Jan is going on four years of battling.
The oncologist had mentioned to us a few times that at some stage the chemo will stop working, well that crossroads happened about 6 weeks ago and she has not had chemo for that time frame.
So while it's good that she's not bed ridden as much without that poison going through her it's also uncertain times.....
She has been doing so much research on the internet and Facebook that it's very overwhelming and truthfully I think it's too much for her.
I did find some tea for her that has been really good if you're on Facebook-- Essiac Tea. But you have to make sure you get the correct kind with 4 herbs only and you have to make the tea yourself the guy ships it to you from Canada the stuff you buy at the store is not correct.
People have also been fighting it with Ivermectin and fenbendazol which is a dog dewormer.
Sounds crazy but check it out.
As far as yourself--good luck, try to stay busy as it can be very stressful but you need to be positive around her.
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Gary,
Sorry to hear about Jan. I do hope the tea has a positive affect on Jan. I believe there are some homeopathic things that do have an affect. People should also know that some of the homeopathic items do minimize the effectiveness of the prescription drugs (chemo, immunio,... treatments) Things you'd not expect, so for rs. Appl, do discuss with doctor certain foods, and supplements that they have no conflict.
You can look up Joe Tippins, he is the guy who has been pushing dog dewormer and one of the people I referenced for anti virals. I don’t have a link to the literature about the clinical trials he has been involved in lately. A good buddy of mine is friends with Joe and adopted his treatment method when he developed cancer. My friend claims that treatment was how he beat his cancer. I have another friend using that treatment with chemo for his lung cancer. My best friend started it as well but unfortunately his brain cancer was too advanced at that point and he died in hospice.
Well, now that we’re a little bit more settled down here in Texas I think that things may have just worked out the way that they were supposed to. My wife has responded fantastically well to her chemo treatments, to the point that her oncologist was almost teary eyed and giddy this week when we were in after her labs. Her CA-125 levels are down to a level that increases her 5 year survivability rate something like 800% after surgery, which should be the second week of May. We’ll have an exact date tomorrow, I think, but that will be followed by 4 more cycles of chemo.
I think that she would have gotten pretty good ‘standard’ care back in our small town back home, but she wouldn’t have gotten the same mix of treatment that she has received so far from this facility that sees so many people, that’s for sure.
The only downside for her is that she is going to have to put up with me for longer than she otherwise would have had to!!!!!!
Glad to hear the positive news.
Best of luck to the both of you on the recovery.
Keep the faith Brother....
I get CT scans every 3 months. The last 3 have shown”no evidence of further disease” so I’m officially in remission. Now it’s just a matter of how long to continue immunotherapy. Since there’s no data on ending treatment we’re going to keep it going as long as I can tolerate it. And my oncologist is nearly as happy about my results as APLMAN’s wife’s. Those doctors need to able to deliver good news.
Mr Apple, get Mrs. Apple a pair of the cooling gloves to wear during chemo. It cools your hands causing less blood flow in them, meaning less chemo passing through them, and lessen the likelihood of neuropathy. It's no fun if it happens to you. You'll keep them in the freezer the night before and good to go. Also, great news!
She’s got a couple pair of what her doctor calls ‘ice bath gloves’. She’s automatically more prone to neuropathy because she’s a Type 1 diabetic to begin with.
Just found out yesterday that because her CA125 number is so low they’ve been able to move up her surgery quite a bit so now it’s actually going to be April 22. Time to start getting nervous, as this will be her first surgery after her mechanical heart valve and needing to be on blood thinners.
It sounds like your family has taken “The Holeshot!” on this. It’s kinda wonderful, isn’t it?
It’s awesome to see the progress your wife is continually making.
Positive thoughts sent your way.
Manny
Positive thoughts for your family APLMAN. I hope it goes as planned for your wife
Thoughts and prayers out to Mrs Appl. Also, have her keep ice in her mouth during infusions, same concept, also helps with the mouth sores.
TM
And the (next) big day begins in earnest. Heading towards the hospital in about an hour. Going to be another loooooong day of waiting, but hopefully the news is good.
Will be praying for you guys
Hope it's going well.
Well, after her getting moderately groggy but not fully sedated, the surgeon decided that her white blood cell count was too low so the surgery was called off for today. It was a real pisser, but better safe than sorry I know. It's just very frustrating trying to get all the numbers to line up perfectly between her Type 1, her blood thinners, her CA-125 levels, the chemo chemicals, etc.
Hopefully she gets another shot this coming Monday and everything is still in sync.
Pit Row
Still waiting and hoping for only the best outcomes.
Stay Stoked. You and your’s…you’ve got this.
Hoping you and Mrs, Apl have better news tomorrow. Waiting is tough for everyone involved,
Thanks for the kind thoughts, Dave. Surgery is scheduled for May 6, Monday after next. And yes, it’s going to be a long week till then!
APL,
My prayers are for you strength, and for your wife's healing.
You are in a Good place with good doctors.
We care for you both. . .
Pisto
Give us time to pray for her
So, after the May 6 surgery was also canceled during surgery prep because of some bloodwork, my wife finally had her cancer removal surgery yesterday morning. I guess that the results were worth the wait, because the doctor said that the chemo had basically cooked the tumor down to a tiny size and they didn’t see signs of any more growth. She was extremely happy with the surgery and said that it bodes really well for it not returning for quite some time. She’s still got 3 more big chemo infusions after surgery and will be taking oral cancer meds for at least the next couple of years, but the news from yesterday really gives us hope.
I can’t say enough good things about the treatment from Baylor, especially when the first oncologist she met with after her biopsy back in WA immediately told her that her best treatment option was palliative care. I know that he meant it as to make her life comfortable while pursuing proper medical measures, but it came across as being defeated before even trying to fight. And here, at a committed cancer research hospital, there hasn’t been any feeling of being defeated, even though they’ve been very honest about the long term survival, effects on quality of life, etc.
Sometimes it seems like the mental approach is almost equally as important as the physical challenge, and I believe that is the case for my wife. She left her first oncology appointment thinking that he may not live for another 24 months, now she believes she has a chance to live 30+ more years!
I’m very happy for both of you!
Your success in this, as a family, is enlightening.
So very happy for your wife.
Your comments about Baylor are not lost on any of us. Thanks you for sharing that.
Wow! Awesome man 👍
That's good to hear.
I was beginning to think, no news is bad news.
That is such fucking awesome good news!
And I'd like to chime in on the "where to get treatment". Most people go to their local "oncologist". That "local oncologist" does NOT have the knowledge or resources to do what a cancer center can do. It's not the local guy is bad, he's probably pretty good. He knows a decent amount about a LOT of different cancers because he CAN'T specialize in just one. The cancer center has enough clients they can divide them to specific groups and have docs that specialize. Why this is important? There are tests that need specific knowledge to get approval from insurance to tweak the treatment for better results. When you have the luxury of being a specialist, you're monitoring every new piece of literature in your segment that can help your patients. There's typically equipment in the center for quick testing, information is only good if it's useful. Delayed information may no longer be useful. Specific order of procedures may affect outcome. Anyone you know that tells you they have just been DXed with cancer, make every effort possible to get them to go to a top tier cancer center.
TM
Was thinking about this and hoping things are going wonderfully well.
Manny
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