Edited Date/Time
3/24/2014 9:43pm
Been back at home for about 2 weeks now. Still get winded going up just a flight of stairs
but cancer's gone for now. Not allowed to be around people yet. So I can't go to the store
or anything like that. It's amazing how fast you lose muscle not doing anything. Got in trouble
for trying to exercise in the hospital. I acquired some blood clots that they are concerned
might move so no exercise and I'm restricted to lifting only 8lbs (that's up from lifting just 3 lbs
last week). Doc says walking only.
Would like to ride some laps at Pala by the end of the year, we'll see.
TM
but cancer's gone for now. Not allowed to be around people yet. So I can't go to the store
or anything like that. It's amazing how fast you lose muscle not doing anything. Got in trouble
for trying to exercise in the hospital. I acquired some blood clots that they are concerned
might move so no exercise and I'm restricted to lifting only 8lbs (that's up from lifting just 3 lbs
last week). Doc says walking only.
Would like to ride some laps at Pala by the end of the year, we'll see.
TM
What kind of cancer did you have and how are you doing? You gonna be ok?
I have a rare lymphoma. Unfortunately, not something I can get rid of, but should be years out
before going through this again.
Here's to the results being all clear!
TM
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In the meantime hop on Netflix and watch House of Cards or Breaking Bad!
Also check out True Detective on HBO. These shows are killer; better than movies.
Hope you get up and around quickly, and get to go burn some fuel soon.
Sounds like I'm talking about drug treatment or something. Anyway, keep up the good work and post more updates. I like hearing about the details so don't get self conscious about posting about it too much.
Do it Bro!
I was very lucky in that I responded well to what I've been given so far. One thing I've learned is that,
you absolutely have to go to a major cancer center for information on treatment options. Of course
my situation is that there are not that many docs familiar with my disease. I think my regular onc has
treated maybe 3 others with this in his 30 year career. So in conjunction with my regular onc we've
also had specialists from UCSD with oversight.
Best of luck,
TM
Pit Row
TM
My longtime friend just had a transplant about 2 weeks ago, in fact his brother just called me yesterday with another update. It was a rough couple of weeks for him but there are no signs of rejection, and he is finally starting to come back around a little. His donor was a female from Europe, and someday he would love the opportunity to thank her as would I and several others. Kind of weird that another person could be a better match than a full blooded brother, but in this case it was true.
I signed up for the donor match program about 11 years ago after a different friend of mine lost his young daughter to a rare form of cancer.
Stay strong and keep the faith.
May God bless you.
The hallway is a loop, 26 loops is 1 mile. My stay there was 2 months. During my walks I met some of the other
patients. You come to find there is no discrimination on who is affected by this horrible disease. I met
every day Joes like me to CEOs in charge of billions of dollars. Best of luck with your friend, I hope his procedure
is effective against his disease.
TM
Manny
So do I understand correctly that your cancer is isolated to one kidney? Why do they change the strength of the meds? Is it so toxic they need to see how you react? Well that's a good sign that you are able to handle lower dose Sutent. Prayers are going right back at you brother that this works. Believe me when I tell you I know exactly what you're going through right now.
TM
Ken
ToolMaker: My buddy is still pretty beat down from the SCTP but they have him trying to get back to solid foods now.
Hope you guys get feeling soon, stay strong.
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