Ride for Autism Awareness

YZ441
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Edited Date/Time 1/25/2012 8:13am
I am trying to put together a cross country ride to raise money for Autism Awareness. We are looking at starting the ride in the Clearwater, Florida area and ending in the Ventura, California area. The route we are looking at is 2,620 miles. I've always wanted to do something for Autism ever since my little brother Austin was diagnosed when he was 3 years old. If anyone is interested in this ride as far as riding in it or even just making donations to help support it send me a message and I can give you more information and details on the event. Thanks guys.
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YZ441
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2/6/2011 8:26am
Also I have been emailing companies about helping support the ride, and riders that plan on riding the event. You dont have to do the full 2620 mile ride. if you want to just ride a portion its up to you. Myself and one of my close friends will be riding the full distance.
MCfan4life
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2/6/2011 3:47pm
Good luck with it YZ441.

Being from Australia I obviously won't be able to make the ride but I'll give this thread a bump as I have a son with Asperger's and know of the increasing Austirm rate in both the U.S and around the world.

Again, best of luck.
Travis707
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2/6/2011 10:21pm
That's a great cause, YZ. Maybe you would get a better response if you posted more info in this thread. Perhaps you could ask the moderators if they could pin it to the top of the forum? Otherwise, I suspect this thread could sink too far down and not be seen... and that would be a real shame. Hopefully you get a great turnout and help raise autism awareness a bit more!

Autism Awareness is very important because most so-called "normal" people don't realize how much people with autism struggle to get through each day in a world they don't quite understand dealing with people that don't quite understand them. You probably come into contact with someone on the autism spectrum almost every day but don't realize it!

My oldest son was diagnosed with autism about a year ago... at 15 years old. He is high-functioning and is quite bright in some areas but has struggled in other areas his whole life. We went through hell at times before he was diagnosed. Over the years, his school teachers told us all kinds of things... he was immature, lazy, disorganized, unmotivated, etc. We started hearing those sort of things when he was in kindergarten... and kept hearing it year after year.

What threw most people off was, for example, he was reading at the 6th grade level in 2nd grade. My wife and I knew something more was going on... but we had no idea what... and the public education system was no help at all to us. We discussed our son with pediatricians, family practice doctors, a sociologist and a school psychologist but they never had any ideas that were helpful. We had him evaluated three times but still no help. Granted, they were not autism specialists, but they still weren't able to point us in any direction. Talk about frustration! One day I read about autism in the newspaper and there were a few things in the article that made me go hmmmm. After researching autism online, I knew we were finally on the right track.

When we had him evaluated by an autism specialist and we told him of our experiences over the years, he was visibly upset that our son had to go through all that. He was disgusted by the fact that so many professional educators and doctors who should have at least suspected autism never had a clue. To him, the autism was obvious and he thought at least one person over the years should have at least suspected it. Well, through increased Autism Awareness, hopefully other kids won't go through what my son did.

MCfan, I suspect the autism rate is not necessarily increasing but rather it is finally being recognized and diagnosed. It has been around a long, long time... it's genetic. The experts in the field say something like 1 in 10 people are on the autism spectrum... the spectrum being from severely autistic to high-functioning autistic.

Those on the severe end of the spectrum are pretty easy to spot but those on the higher end of the spectrum are typically viewed by most "normal" people as a bit odd or strange or quirky. So the folks who are on the high-functioning end... and perhaps have struggled through life undiagnosed... or misdiagnosed... are finally beginning to be properly diagnosed. With a diagnosis, they are able to learn about the disorder, better understand themselves, and learn how to function in a "normal" world.
Hank_Thrill
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2/6/2011 10:30pm Edited Date/Time 2/6/2011 10:34pm
Dude, I'd love to be involved. I live in Oklahoma, so if you need a place to crash coming through mid-America let me know. I also wouldn't mind riding in it, depending on the schedule, and helping raise some money. I'm a mental health therapist in training, and have worked with kids with autism in Boy Scouts. It's definitely something I'm interested in.

The Shop

Kurt
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2/7/2011 5:10am
Bump.
TerryB
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2/7/2011 7:50am
Post more info as it comes together.
YZ441
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2/8/2011 6:21am
Right now its still in the early stages of devlopment, I'm still working out all the expenses such as gas, lodging, food, etc... to present it to the Autism Awareness foundation so then when i go to present it to cooperations i actually have a backing so they can use it as a tax write off.

As for a time frame for the ride we are looking at trying to do it sometime in September or October because weather would be best or so we hope.

If anyone has any idea or input towards this on how i could present it to the Autism Awareness foundation and to MX companies for support and donations I'd really appreciate it. I'll be launching a Facebook page for it once i speak with them.
YZ441
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2/8/2011 6:29am
Travis707 wrote:
That's a great cause, YZ. Maybe you would get a better response if you posted more info in this thread. Perhaps you could ask the moderators...
That's a great cause, YZ. Maybe you would get a better response if you posted more info in this thread. Perhaps you could ask the moderators if they could pin it to the top of the forum? Otherwise, I suspect this thread could sink too far down and not be seen... and that would be a real shame. Hopefully you get a great turnout and help raise autism awareness a bit more!

Autism Awareness is very important because most so-called "normal" people don't realize how much people with autism struggle to get through each day in a world they don't quite understand dealing with people that don't quite understand them. You probably come into contact with someone on the autism spectrum almost every day but don't realize it!

My oldest son was diagnosed with autism about a year ago... at 15 years old. He is high-functioning and is quite bright in some areas but has struggled in other areas his whole life. We went through hell at times before he was diagnosed. Over the years, his school teachers told us all kinds of things... he was immature, lazy, disorganized, unmotivated, etc. We started hearing those sort of things when he was in kindergarten... and kept hearing it year after year.

What threw most people off was, for example, he was reading at the 6th grade level in 2nd grade. My wife and I knew something more was going on... but we had no idea what... and the public education system was no help at all to us. We discussed our son with pediatricians, family practice doctors, a sociologist and a school psychologist but they never had any ideas that were helpful. We had him evaluated three times but still no help. Granted, they were not autism specialists, but they still weren't able to point us in any direction. Talk about frustration! One day I read about autism in the newspaper and there were a few things in the article that made me go hmmmm. After researching autism online, I knew we were finally on the right track.

When we had him evaluated by an autism specialist and we told him of our experiences over the years, he was visibly upset that our son had to go through all that. He was disgusted by the fact that so many professional educators and doctors who should have at least suspected autism never had a clue. To him, the autism was obvious and he thought at least one person over the years should have at least suspected it. Well, through increased Autism Awareness, hopefully other kids won't go through what my son did.

MCfan, I suspect the autism rate is not necessarily increasing but rather it is finally being recognized and diagnosed. It has been around a long, long time... it's genetic. The experts in the field say something like 1 in 10 people are on the autism spectrum... the spectrum being from severely autistic to high-functioning autistic.

Those on the severe end of the spectrum are pretty easy to spot but those on the higher end of the spectrum are typically viewed by most "normal" people as a bit odd or strange or quirky. So the folks who are on the high-functioning end... and perhaps have struggled through life undiagnosed... or misdiagnosed... are finally beginning to be properly diagnosed. With a diagnosis, they are able to learn about the disorder, better understand themselves, and learn how to function in a "normal" world.
Yeah my little brother Austin who is now in 5th grade was diagnosed early but he is semi high funtioning. He's speech is like talking to a 3 year old. but in other aspects the kid is a genius. they say that when people with autism find what they love they will usually be the one of the best at it in the world. For example Clay Marzo was diagnosed with it and is a pro surfer. Kelly Slater said he is proably in the top 5 of best free surfers in the world. The kid absolutely destroys it. I recommend watching his documentary Just Add Water. its amazing.
Xavier
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2/8/2011 7:48am Edited Date/Time 2/8/2011 7:49am
Travis707 wrote:
That's a great cause, YZ. Maybe you would get a better response if you posted more info in this thread. Perhaps you could ask the moderators...
That's a great cause, YZ. Maybe you would get a better response if you posted more info in this thread. Perhaps you could ask the moderators if they could pin it to the top of the forum? Otherwise, I suspect this thread could sink too far down and not be seen... and that would be a real shame. Hopefully you get a great turnout and help raise autism awareness a bit more!

Autism Awareness is very important because most so-called "normal" people don't realize how much people with autism struggle to get through each day in a world they don't quite understand dealing with people that don't quite understand them. You probably come into contact with someone on the autism spectrum almost every day but don't realize it!

My oldest son was diagnosed with autism about a year ago... at 15 years old. He is high-functioning and is quite bright in some areas but has struggled in other areas his whole life. We went through hell at times before he was diagnosed. Over the years, his school teachers told us all kinds of things... he was immature, lazy, disorganized, unmotivated, etc. We started hearing those sort of things when he was in kindergarten... and kept hearing it year after year.

What threw most people off was, for example, he was reading at the 6th grade level in 2nd grade. My wife and I knew something more was going on... but we had no idea what... and the public education system was no help at all to us. We discussed our son with pediatricians, family practice doctors, a sociologist and a school psychologist but they never had any ideas that were helpful. We had him evaluated three times but still no help. Granted, they were not autism specialists, but they still weren't able to point us in any direction. Talk about frustration! One day I read about autism in the newspaper and there were a few things in the article that made me go hmmmm. After researching autism online, I knew we were finally on the right track.

When we had him evaluated by an autism specialist and we told him of our experiences over the years, he was visibly upset that our son had to go through all that. He was disgusted by the fact that so many professional educators and doctors who should have at least suspected autism never had a clue. To him, the autism was obvious and he thought at least one person over the years should have at least suspected it. Well, through increased Autism Awareness, hopefully other kids won't go through what my son did.

MCfan, I suspect the autism rate is not necessarily increasing but rather it is finally being recognized and diagnosed. It has been around a long, long time... it's genetic. The experts in the field say something like 1 in 10 people are on the autism spectrum... the spectrum being from severely autistic to high-functioning autistic.

Those on the severe end of the spectrum are pretty easy to spot but those on the higher end of the spectrum are typically viewed by most "normal" people as a bit odd or strange or quirky. So the folks who are on the high-functioning end... and perhaps have struggled through life undiagnosed... or misdiagnosed... are finally beginning to be properly diagnosed. With a diagnosis, they are able to learn about the disorder, better understand themselves, and learn how to function in a "normal" world.
YZ441 wrote:
Yeah my little brother Austin who is now in 5th grade was diagnosed early but he is semi high funtioning. He's speech is like talking to...
Yeah my little brother Austin who is now in 5th grade was diagnosed early but he is semi high funtioning. He's speech is like talking to a 3 year old. but in other aspects the kid is a genius. they say that when people with autism find what they love they will usually be the one of the best at it in the world. For example Clay Marzo was diagnosed with it and is a pro surfer. Kelly Slater said he is proably in the top 5 of best free surfers in the world. The kid absolutely destroys it. I recommend watching his documentary Just Add Water. its amazing.
Marzo is phenomenal !
I watched several videos and could'nt detect clear evidence of Asperger's in him (and my son is a high functionning autistic child, so I am very familiar with those syndroms)...
But I guess if he has been diagnosed, he must be Asperger's.
Makes me wonder if any of the famous MX'ers could be affected, while not diagnosed??...
YZ441
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2/8/2011 9:59am
Xavier wrote:
Marzo is phenomenal ! I watched several videos and could'nt detect clear evidence of Asperger's in him (and my son is a high functionning autistic child...
Marzo is phenomenal !
I watched several videos and could'nt detect clear evidence of Asperger's in him (and my son is a high functionning autistic child, so I am very familiar with those syndroms)...
But I guess if he has been diagnosed, he must be Asperger's.
Makes me wonder if any of the famous MX'ers could be affected, while not diagnosed??...
Ive wonder the same thing.
YZ441
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2/8/2011 11:27am
MBBadgers wrote:
Have you contacted Langston?
no not yet, im presenting it to Autism Awareness first so when i go to present it to everyone else they can use it as a tax write off if the Autism Awareness people are on board with it.
Travis707
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2/8/2011 11:31am
Hank, thanks for finding and posting that! Excellent, excellent video that explains the basics so anyone that chooses to can begin to understand what someone with Aspergers (or high-functioning autism) goes through every day dealing with society as a whole.

I was in the process of writing a reply to YZ that, in essence, said the same things as the video.

The biggest issue facing people with Aspergers or high-functioning autistics, is the so-called "normal" people. The video calls them "typical" which is a better descriptor than "normal".

About 6 months ago when discussing some "typical" kids at school, my son said to me, "Dad, sometimes I think people with autism are the normal ones".

Looking at society today, I strongly suspect he is correct.
MBBadgers
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2/8/2011 11:31am
MBBadgers wrote:
Have you contacted Langston?
YZ441 wrote:
no not yet, im presenting it to Autism Awareness first so when i go to present it to everyone else they can use it as a...
no not yet, im presenting it to Autism Awareness first so when i go to present it to everyone else they can use it as a tax write off if the Autism Awareness people are on board with it.
He might be able to put you in contact with the right people at AA is what I am getting at. Good luck it's a great cause.
YZ441
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2/8/2011 11:49am
MBBadgers wrote:
He might be able to put you in contact with the right people at AA is what I am getting at. Good luck it's a great...
He might be able to put you in contact with the right people at AA is what I am getting at. Good luck it's a great cause.
Do you have any contact info? Or could you pm me it?
Travis707
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2/8/2011 11:51am
MBBadgers wrote:
Have you contacted Langston?
YZ441 wrote:
no not yet, im presenting it to Autism Awareness first so when i go to present it to everyone else they can use it as a...
no not yet, im presenting it to Autism Awareness first so when i go to present it to everyone else they can use it as a tax write off if the Autism Awareness people are on board with it.
MBBadgers wrote:
He might be able to put you in contact with the right people at AA is what I am getting at. Good luck it's a great...
He might be able to put you in contact with the right people at AA is what I am getting at. Good luck it's a great cause.
In addition, perhaps if Langston is willing to get involved on some level he could add some star power to the effort and will help add legitimacy (in the eyes of potential donors) to the event. Who knows, maybe he would be willing to ride part of the event or something like that... and get other folks involved. I would think that would only help. JMHO.

This is your baby, YZ so obviously it's your call.

Sean Hamblin is on here from time to time. Maybe he could mention it to Grant as a sort of heads-up? The motocross community is generally a wonderful bunch of people and I would guess those affected in some way by autism would be more than happy to help in whatever way they can.

BTW, get this thing rolling and I will do what I can to help. I know some folks in the industry that will most likely want to do something to help make it a success.
YZ441
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2/8/2011 11:53am
Travis707 wrote:
Hank, thanks for finding and posting that! Excellent, excellent video that explains the basics so anyone that chooses to can begin to understand what someone with...
Hank, thanks for finding and posting that! Excellent, excellent video that explains the basics so anyone that chooses to can begin to understand what someone with Aspergers (or high-functioning autism) goes through every day dealing with society as a whole.

I was in the process of writing a reply to YZ that, in essence, said the same things as the video.

The biggest issue facing people with Aspergers or high-functioning autistics, is the so-called "normal" people. The video calls them "typical" which is a better descriptor than "normal".

About 6 months ago when discussing some "typical" kids at school, my son said to me, "Dad, sometimes I think people with autism are the normal ones".

Looking at society today, I strongly suspect he is correct.
I think he's right. You never see them complain about anything. They ate usually always happy.
MBBadgers
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2/8/2011 11:53am
MBBadgers wrote:
He might be able to put you in contact with the right people at AA is what I am getting at. Good luck it's a great...
He might be able to put you in contact with the right people at AA is what I am getting at. Good luck it's a great cause.
YZ441 wrote:
Do you have any contact info? Or could you pm me it?
I don't have that info but I have written to him at his facebook page and he did respond back.

Grant Langston
YZ441
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2/8/2011 11:56am
MBBadgers wrote:
I don't have that info but I have written to him at his facebook page and he did respond back.

Grant Langston
Awesome. Thanks man.
YZ441
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2/8/2011 11:58am
Travis707 wrote:
In addition, perhaps if Langston is willing to get involved on some level he could add some star power to the effort and will help add...
In addition, perhaps if Langston is willing to get involved on some level he could add some star power to the effort and will help add legitimacy (in the eyes of potential donors) to the event. Who knows, maybe he would be willing to ride part of the event or something like that... and get other folks involved. I would think that would only help. JMHO.

This is your baby, YZ so obviously it's your call.

Sean Hamblin is on here from time to time. Maybe he could mention it to Grant as a sort of heads-up? The motocross community is generally a wonderful bunch of people and I would guess those affected in some way by autism would be more than happy to help in whatever way they can.

BTW, get this thing rolling and I will do what I can to help. I know some folks in the industry that will most likely want to do something to help make it a success.
Thanks Travis. I appreciate your support. And I ride at the track Kyle chisolms younger brother rides at so I will talk to his dad about it as well.
YZ441
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2/8/2011 1:26pm
I contacted Langston motorsports and they are passing my info to grant. Hopefully I'll get a response back from him. Keep you guys posted as I get more info.
WFO72
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2/8/2011 4:47pm
Great post and hope it keeps going. My 18 year old son is Autistic and we're both St Pete native's. Living in Gainesville now and we used to promote the Autism Awareness Vintage MX event at MX of Marion County and had alot of support from industry people as well as pro riders, but it took lot's of work. My son has opened up so many peoples eye's and minds within the education system, which has been one of our biggest obstacles to overcome. If there is anything I could do to help up here in this part of the state, I would be glad to help. I would possible be interested riding a short distance and help raise some support for your cause.

My favorite memory of our Autism Awareness event was in 2001 when we gave a way a new XR70 away. With over 170 drawing tickets sold, my son who always picked the top prize at the event, pulled one ticket for a 17 autistic young man who's single mom bought just one ticket. They were at the event and I'll never forget the look on that young mans face when he finally realized that new motorcycle was his. Amazing that my son picked that one ticket! There was not a dry eye in the crowd. Even Jim Pomeroy, Barry Higgins and Brad Lackey were choked up as they were at the event supporting our cause. To this day that bike sits in their living room and he sits on it and makes motor sounds. He is a low functioning Autistic young man now but still loves that shiny red Honda he won. Best of luck and if I can help, please let me know!
newmann
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2/8/2011 5:18pm
You might want to contact the FLVMX (Florida Vintage MX) group down there. One of the guys who has been active in their club since at least 1991 has an autistic son and has been involved in numerous autism events from what I understand. One of our vintage guys here in Texas donated a super trick 76 RM250 to one of the FLVMX fund raiser races several years back, a very cool and generous gift.

If your trek brings you down IH10, my house is one block off the interstate, about 16 miles after you cross into Texas from Louisiana. I have RV hookups here for your chase vehicle, a soon to be complete guest area in the mancave, pool and red meat always on the grill. Maybe plan a rest day. I'm hoping to help out Jimmy Button and his crew on their way through in March.
newmann
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2/8/2011 5:24pm
WFO72 wrote:
Great post and hope it keeps going. My 18 year old son is Autistic and we're both St Pete native's. Living in Gainesville now and we...
Great post and hope it keeps going. My 18 year old son is Autistic and we're both St Pete native's. Living in Gainesville now and we used to promote the Autism Awareness Vintage MX event at MX of Marion County and had alot of support from industry people as well as pro riders, but it took lot's of work. My son has opened up so many peoples eye's and minds within the education system, which has been one of our biggest obstacles to overcome. If there is anything I could do to help up here in this part of the state, I would be glad to help. I would possible be interested riding a short distance and help raise some support for your cause.

My favorite memory of our Autism Awareness event was in 2001 when we gave a way a new XR70 away. With over 170 drawing tickets sold, my son who always picked the top prize at the event, pulled one ticket for a 17 autistic young man who's single mom bought just one ticket. They were at the event and I'll never forget the look on that young mans face when he finally realized that new motorcycle was his. Amazing that my son picked that one ticket! There was not a dry eye in the crowd. Even Jim Pomeroy, Barry Higgins and Brad Lackey were choked up as they were at the event supporting our cause. To this day that bike sits in their living room and he sits on it and makes motor sounds. He is a low functioning Autistic young man now but still loves that shiny red Honda he won. Best of luck and if I can help, please let me know!
Ed???

I started my post about an hour ago. Finally got back to the computer to finish it up and saw this after hitting submit. Sounds too familiar!
YZ441
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2/8/2011 6:04pm
newmann wrote:
You might want to contact the FLVMX (Florida Vintage MX) group down there. One of the guys who has been active in their club since at...
You might want to contact the FLVMX (Florida Vintage MX) group down there. One of the guys who has been active in their club since at least 1991 has an autistic son and has been involved in numerous autism events from what I understand. One of our vintage guys here in Texas donated a super trick 76 RM250 to one of the FLVMX fund raiser races several years back, a very cool and generous gift.

If your trek brings you down IH10, my house is one block off the interstate, about 16 miles after you cross into Texas from Louisiana. I have RV hookups here for your chase vehicle, a soon to be complete guest area in the mancave, pool and red meat always on the grill. Maybe plan a rest day. I'm hoping to help out Jimmy Button and his crew on their way through in March.
I raced the flvmx race here at sunshine moto. They seemed like awesome people I will def send them a message and see if they are willing to help. You guys really are awesome and I appreciate all the help and advice from you all
YZ441
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2/8/2011 6:14pm
And what's Jimmy button doing?
txmxer
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2/8/2011 6:14pm
Good for you YZ441. Sounds like this thing could really develop into something cool. Keep us updated on your progress in putting it together.
YZ441
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2/8/2011 6:24pm
txmxer wrote:
Good for you YZ441. Sounds like this thing could really develop into something cool. Keep us updated on your progress in putting it together.
Thanks man. I wish guyb would sticky this thread.

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