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The thing that worked best for her was a fairly regular routine. Her last coach was fantastic in dealing with her. The first year was horrible with a terrible assistant coach, along with the difficulty of a pancreas that would sort of, kind of work every now and then. After the pancreas shut down completely, it was much easier.
Her last coach played her a LOT, but he had a very consistent schedule with her. She'd play until there was 2:00 left in the first quarter, sub her out so she could test/eat/dose, etc., then she'd have the quarter break/timeout also. She'd start and finish the second quarter on the floor, then test/eat/dose etc. at half time. Repeated the pattern in the second half. Basically played 36 minutes out of 40, but had the consistent breaks to make sure she maintained well.
I still believe that the consistency factor is what kept Adam Morrison from succeeding in the NBA, and it's at least a contributing factor in Jay Cutler's erratic play. Morrison had a game "schedule" similar to my daughter's when he was in college (that's what her coach based his on, even called up Mark Few to talk with him about it!).
My daughter's diagnosis was our second in the family, my wife (daughter's stepmother) is also Type 1. She was actually misdiagnosed as an adult, and her level of education and support was shameful. When my daughter was diagnosed, she spent a week at Children's Hospital in Seattle, and the education they provided was huge for my wife's health as well.
How long have you been diagnosed? Are you past the "honeymoon" phase, where your pancreas spits out insulin of random amounts at random times? For us, exercise and sports in general got a lot easier after that.
So, whats my point? There is a small chance of this happening to you while riding. But, it is possible, and if it does, it could cause grave consequences. I would consider other options if I knew I would be riding or racing. Just my .02 cents.
The ones that are dosing automatically are getting closer to acting like a mechanical pancreas.
Dr. Denise Faustman at Harvard is working on some great research, but no pharma company is going to get rich on it so it's not funded too well by the normal groups. Basically using a very cheap drug that's been around for about a century to kill the rogue T cells that attack the islets in the pancreas. Completely reversed Type 1 in lab rats that were nearly dead due to diabetes, and very promising results in human trials thus far.
If we were anywhere close to the Northeast, we'd sign up for her trials!
The other thing that they almost always have with them are the little tiny tubes of cake frosting. If they are incapable of drinking juice, you can rub the frosting on their gums and it will get into the bloodstream pretty rapidly. It won't usually bring someone all the way out of a hypoglycemic condition, but can get them to the point that they can take juice to begin recovering.
Type 1 isn't "caused" by lifestyle, it's an autoimmune thing.
Josh Summey raced pro amazingly well.
http://www.dirtrider.com/features/interviews/141_0703_racing_with_diabetes
Something like 10 grams of carbs per 1 Unit of Humulin R within 15 minutes of a 5-10 Unit shot. Then another full meal 60-90 minutes later. Some are using Humalog but most us R because you can just walk in to any pharmacy and buy it.
Pit Row
We have to ensure that we provide carbs that burn slower and will keep his levels on the high end to avoid a low mid race. (Most races do not have pit stops for a juice box
Type 1 is a complex issue with an almost unlimited amount of variables. But, as evidenced by this thread, people can do an excellent job of treating themselves or their family and friends. Truly, the people that have it or treat it with family and friends, they are the experts. My hat is off to you all.
https://clinicaltrials.gov/ct2/show/NCT02081326
I do 2 HR HS and 5 HR enduro's. Mainly, I try to load up before the race and make sure that I eat something if possible. I use straight gatorade in my camelback, which helps also. I would rather be high, as nobody cares in the short term, but if I get low, the race is over. I once made the mistake of having nothing, and had to ride back 10 miles through the woods alone to the start on an enduro hunched over the bars, not sure if I was gonna just fall over and die. it was not a good feeling. Also, I got stuck in a porta potty once after the race as I did not have enough energy to stand up and pull up my pants.......Was less fun. As other have pointed out, just make sure to bring something, but for 20 minute moto's you will prob be ok.
https://www.cp24.com/news/canada/2025/06/20/woman-off-insulin-for-type-…
Pretty cool to see. Being a type 1 diabetic as difficult as it can be its cool to see all the breakthroughs. Not sure how accessible the stem cell stuff will be in the US but I do believe in the next 8-12 years there may be a more accessible "cure".
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