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Everytime I pop in here your updates are positive and even up lifting for myself. I'm so happy for you and your Mum, and we are all looking forward to the day you guys get to go home.
You gotta keep us in the loop Ezza, as it will be nice for us here to chip in and send Mum a big bunch of flowers ( from all us Vitards) How cool will that be? You show your Mum this thread....strength, power, love and prayer from all around the world.
We are behind you all the way....
Thank you guys, it really means a lot.
UPDATE: Mum is eating all her lunch and dinner! I load the spoon and she feeds herself and wipes her mouth with a tissue if necessary (not often). I’m going to keep doing this for a bit, then work on her doing it all.
She’s now allowed to drink normal fluids (they have thickened drinks just incase swallowing too much causes problems) and can drink from a cup or through a straw. She was loving the apple juice and wanted to hold the cup and drink it herself. The straw is easier as the NG tube gets in the way and prevents her from being able to drink from the cup properly.
The doctors, nutritionists, speech pathologists and nurses are all stoked with her progress and she will only get fed through the tube overnight from now on. This will obviously help her have more of an appetite but also we are getting closer to being able to get rid of it completely.
She’s still got a long road ahead of her but is really showing how much she is willing to win this battle.
Thank you again for all the support everyone. Looking forward to another amazing day.💪😌❤️💃
Ezza, you sure have a mixed bag of emotions today. Focus on the better memories.
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I’m sorry . 💔
Your devotion to you mom is heartwarming. ❤️
Sorry to hear. Damn man that's tough. Dec 22 will be 5 years since my brother passed. Some days I still get angry with him over his dumb shit. He was my child hood best friend we drifted apart after Dad died at 52 and then he actually worked for me for a few years and we healed some wounds. He was 53. Now I'm raising my mom (LOL) who will be 87 in July. Just figured I'd give you a slice of my background. Hug mom extra today and don't be to hard on your brother or yourself. Your a good man Ezza. Take care my friend life can suck at times.
Damn...sorry to hear my friend.
Thank you for that message. All of these give me so much encouragement and strength, more than you may think. The fact that you guys are opening up when you don’t have to and we can relate in many ways really means so much.
I’m currently sitting on my back veranda, having a beer, and am pretty much facing in the direction of where mum is… She got transferred this evening!
I’m less than 5 minutes away.
💪😌❤️💃
Took me 7 minutes from driveway to hospital and 4 of that was the two sets of lights I had to sit at.
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The view from mum’s bed…
We put mom in assisted care last January and the room we picked out is South facing with a nice tree in front of it. Was really hoping a bird would make a nest outside her window but no luck.
Still a nice place with a good care team.
UPDATE: The move took a bit out of mum but she was good this evening. There was a visitor for an elderly gent across from mum that spoke French! We had a brief yet good conversation and mum was following along.
She starts rehab/therapy tomorrow (this is a public hospital) and I’m looking forward to seeing more progress. I met her doctor today and he was the best I/we have dealt with so far.
There’s a new digital system that was just rolled out a few days ago and the nurses are struggling and it’s got bugs of course. It took 3 people 10 minutes to figure out when and if she had or needed her paracetamol.
Stoked regardless and know she’s going to continue to progress… 💪😌❤️💃
UPDATE: Mum was still a bit “off” during my morning/afternoon visit but way better during the afternoon/evening visit. The doctor came and checked on her and was really lovely and positive,
It was during her lunch and when he saw that she was feeding herself (I load the spoon and she does the rest) he said “Oh! Okay.”. He spoke to mum in such a gentle and kind manner and gave off a really good energy.
A young guy named Ollie from PT checked in too and she did great with the few basic exercises/tests he made her do. He was awesome and also stoked to see how well she did. After that a lovely lady Coleen from OT came and checked in and she was next level amazing and went above and beyond to make sure mum is being looked after.
It was so good and I’m really stoked on the day. looking forward to what’s to come.
Thank you for letting me take you all along for this journey my friends. I appreciate all the love and support so very much.
💪😌❤️💃
Today was another amazing day.
Everyday is a miracle, so happy to see.
So much has been going on that I haven’t had a chance to show her the highlights from Pala… I did update her though. 💪😌❤️💃
Pit Row
I'm so happy to see your Mum out of the bed. Onwards and upwards my friend. Your Mum"s progress is inspiring.
UPDATE: Mum is really impressing everyone from the nurses, speech pathologists, PT/OTs, nutritionist, and most importantly, the doctor!
You cannot begin to imagine how stoked I am on the progress she has made (it dipped a bit from the transfer on Saturday) and today was unbelievable!
She’s now going from purée to “mince” and the NG tube should be completely gone by next week.
She has been getting pretty severe cramps in her foot but we’re working to get that sorted. Other than that, I’m just amazed.
Thank you for all the kind messages and support everyone, and as I said, just taking the time to read the updates and keep her in your thoughts and or prayers means so much.
💪😌❤️💃
Today was rough fellas. Mum was in agony all day from these cramps/pains(?) that would come and go every 5 to 10 minutes. It broke my heart seeing her in so much pain and knowing that she was dealing with it all night on her own and that I couldn’t help.
I’m choosing to leave it at that as I want to keep a positive energy; I wasn’t even sure whether to post this or not but kind of need to.
Thank you for letting me get this out everyone. I know mum will overcome this and continue to kick arse.
💪😌❤️💃
Unfortunately there will be bad days. Somedays its hard to stay positive. I like your approac . Keep the fight. Hug mom.
Sorry Ezza, I’m know Dr, but it sounds like like she’s dehydrated. Is she taking in enough liquids? 💔
That’s definitely an issue as she’s only been able to drink actual water for less than two weeks. I’ve been taking my own water (Pureau) with a bit of Celtic salt mixed in and she’s drinking more and more everyday.
Got her some good quality magnesium capsules yesterday from the compound chemist as well as magnesium cream and hopefully this helps too.
The doctor was doing his rounds late yesterday and got them to take her in for an X-ray at about 6pm and doing a few tests to try and find out what’s going on, so hopefully I find out more today.
Today will be an amazing day.
💪😌❤️💃
EZZA,
What’s the “balance” of supplements…potassium…magnesium…etc. and how are they handling that?
(All meant in regards to managing her muscles/cramps/nerves)
Tell her she remains in our hearts and minds.
Thank you Manny. The hospital isn’t giving her anything other than Sustagen drinks which are full of nasty ingredients.
I’ve been giving her this once a day…
One of the things I have realized is that I still need to be my mom's advocate and look after her despite spending a lot of money at an assisted care facility for other people, who you would think have better judgment then me because of experience dealing with old people, to make good decisions.
Nobody you pay will take as good of care of your aging relatives as family. FACT.
I did my best to keep my mom independent living in the house her and dad built till she was 93. But I just couldn't do it anymore.
Anyways Ezza, keep your head up and be vigilant but also do not beat yourself up if things don't go perfect. Always look forward.
You should talk to the doctor and see if putting her on a IV drip will help see if the muscle cramping, goes away.
Thank you guys. She’s doing way better today and hasn’t had pain since getting here two hours ago!
She pulled the NG tube out the last two nights and the doctor and nutritionist are going to decide whether to put it back in or not.
She was mega low in the bed and all crossed up with no support under right arm and I got it sorted on my own.l (she helped as much as she could).
UPDATE: As I was writing this I was told they’re happy with her food intake and weight so the NG tube is staying out! She ate lunch like a champ and drank heaps of water.
I knew today was going to be an amazing day! Thank you everyone for all the continued support. I told her you guys are thinking of her and she was stoked.
😌💪❤️💃
Just wanted to add that my sister has been a nurse in aged “care” for 18 years (she loves what she does and is really good at) and even she doesn’t want mum going to an assisted living facility.
I worked at 5 facilities owned by the same family doing the lawns and other “maintenance” type things for 3 years and it broke my heart to see the residents pretty much just left to live their final years sitting inside all day and how few were visited by family members or “friends”.
Even basic rooms/packages in half decent nursing homes cost over half a million AUD and it’s something I could never afford nor ever consider even if I could.
You’re a good man and I’m trying to be the same.
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