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Gluten is not a natural food, at least not in quantities like we see today. Gluten causes inflammation. Crohn's and UC are inflammation out of control. No, no link at all, impossible.
There is more than one way for the body to go after it's own organs (auto-immune disorder). The best we can do is research stuff ourselves because medical science is so weak. If you have inflammation, don't pour fire on it.
Remember ulcers? They were kicking medicines ass until 1982, when someone figured out they were caused by infection, not stress as previously believed. Up until then , medicine said exactly what it is saying about Crohn's and UC, its genetic, it's stress, its auto immunity, we don't know.
http://www.news-medical.net/health/Peptic-Ulcer-History.aspx
When they do figure out what causes Crohn's and UC, remember this thread. Gluten will be part of the explanation.
And having Crohns for 15 years, I can tell you Gluten has ZERO effect on me.
TFS, have you been diagnosed with Crohns, UC or IBS?
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This thread deserved it.
What I did change was
1) stopped smoking. UC started a year after that. That seems to be a common trigger for UC
2) I swore off NSAID (ibuprofen...) My last episode came after I severely sprained an ankle when I started taking ibuprofen.
3) I sold my bike before. I bought (multiple) bikes after.
Personally I'm going with 3. Riding is obviously necessary for your well being. Stop at your own risks.
I've often read, and my doctors told me back then, to avoid spicy foods when you have UC. What was interesting is that just prior to my remission 8 years ago, I CRAVED spicy foods all the time for about a month straight. So I started putting cayenne pepper on my eggs, adding hot salsa to everything, and eating jalapenos right out of the jar. After doing that for about a month or so, my craving for spicy foods was gone, and I went into remission for the longest period I have ever been in, to present day. During this entire time, I've had no ASACOL, no Prednisone, or any drugs period.
Weird how the body works.
One things for sure having almost 0 gluten, and wheat in my diet and still getting flares basically throws your opinion out the window.
It was once I stopped riding and training it all went down hill. I firmly believe that exercising is the best thing for me with keeping my Crohns at bay. There are other things but I feel like that is the biggest part of my ability to function on a semi normal basis.
My opinion about my case is that it was definately wheat/gluten triggered. Everyone is entitled to their own opinion, and it is probably no worse than what medical science thinks, or a guess!
If you have Crohn's are are 100% sure wheat/gluten is 100% troublefree, for you, then eat up. Don't look for any reasons why, just do what the dr says and take the pills. Good luck with that. Then ask the dr what causes it, and tell us what the answer is if it is something besides "we don't know."
BTW-Just suppose my hypothesis is even partly right, which is nearly certain. If wheat/gluten is a trigger, that does not mean that wheat/gluten is the fix. If you cut it out and nothing gets better, it would be incorrect to say "See, I can eat this stuff all day and it doesn't matter, so it was not the cause." Chronic inflammation does not always work that way. Once it flares up, removing the root cause may do you no good at all, because it's now out of control and about to get a name like Crohn's or UC.
This is why drs can't tell you the cause. The cause is gone and the inflammation remains. The body just keeps going after it. That is why it's called an auto-immune problem.
I didn't expect so many to have this shit either. I'm sorry to hear it for everyone. It was very hard to deal with for 5 years (1986-1991), then the aftermath and the Prednisone withdrawl and hormone crash. I think it would be a good idea for people to be a bit more open minded, and stop trying to avoid info that may help just because this is a web forum and arguing or trolling is the thing to do!
If you think your dr knows exactly what the cause is and the best way to approach it, think again. Just like what I say may not exactly fit you personally, neither does what the dr has to work from, which is only statistics, assumptions, and a bad track record (like with ulcers, eggs, cholesterol, etc). You have to figure it out yourself, and this requires being open to different opinions and grabbing all the clues you can.
Last part... In 2011 the custom pouch fails. It develops a hole about 5mm by 20mm. Now I get to watch drs at work analyzing what to do. First they go to the published literature on 20-year old pouches. The research says that 20% of those that failed were due to a misdiagnosis of UC that was really Crohn's-which comes back. Another 20 were... blah blah. What it is leading to is they want to talk me into just taking it out, and going with the external bag. I'm freaking. They dont have any data on what is wrong inside, they haven't looked in detail. They are just jumping to conclusions based on what they read, not from what is going on with me. I told the first surgeon "I can google the same journals. I already did. I read the abstracts. It's not a misdiagnosis, and BTW, when are we going to figure out what is wrong with me instead of the people in the published journals?" I got a new surgeon and he decided it was worth fixing.
Nothing new here. In all profession you have your unimaginative people who just go through the script even when all the evidences tell them it is wrong. They got the degree but all they can do is parrot what they've learned instead of using their training as a starting point to solve problems.
Case in point with my adventure in UC land:
- First attack was brought down relatively fast by my general practitioner.
- Second one, he sends me to a "specialist" who prescribe the new and improved treatment:: Rowasa. This incident took for ever to go in remission. I asked the "specialist" if we can go back to the stuff that worked the first time and he tells me "no, Rowasa is the best current treatment we have"
- Third (and thankfully last) attack, the doc wants to send me back to the specialist. I tell him that the guy doesn't do anything more than he does but charges me more. We start on Rowasa and I immediately get worse. I talk with my doc, and he agrees to go back to the "old and not up to snuff" treatment. Back into remission relatively fast.
Of course this is all anecdotal. But I tell you, a good doc willing to listen to you is worth his weight in gold. Unfortunately mine just retired. (but that's OK, I've decided I wasn't going to get sick anymore :-)
Robb spoke about the LC/athlete stuff on his podcast episode 167. Some points:
-Phinney/Volek recommend SuperStarch before and after athletic events (a complex carb that is supposed to be slow releasing) to get glycogen into the muscles
-Aerobic activity is okay, but athletes struggle with anaerobic activity in the glycolitic pathway or "lack of a low gear" due to the lack of glycogen in the muscles.
-In any type of athlete that is required to do work that is longer than about 2 seconds in duration, carbs are needed for suppression of cortisol release.
-No prominent athlete has come onto the scene at the regional/national level using a strict ketogenic approach.
-LC is great for "building the base" activities (long distance cycling, steady state cardio) to ramp up the lipolytic enzymes so they do metabolize fat more effectively, but biology has not figured out how to get the same power output out of fat that we do out of glycogen.
Referenced this article (by Phinney, no less) in the Journal of Nutrition and Metabolism. Here is the final line of the Conclusion section:
This is the one I've been looking at. http://www.amazon.co.uk/CytoSport-Muscle-Chocolate-Protein-Powder/dp/B002DUD6QU/ref=sr_1_1?ie=UTF8&qid=1361057622&sr=8-1
Pit Row
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