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I think stem cells are the most promising and the way to go but I'm not sure when it'll become a standard thing. I'd be open to do some clinical trials if they had something close to me. Paying for that I'm sure won't be cheap once it finally hits the market. I'm in Canada so hopefully it will be covered or at least a good portion of it.
I'll share a little something about my injury. When I got hurt it was determined that I was a complete injury which you know means no function or sensation below the injury level. Everyday I try and move legs and even though nothing moves when I try I can feel some type of current/sensation moving through my legs but it just seems like the signal is not strong enough to actually make them move. After I try to move them for a while it seems like the signals going down my legs get tired and go dead like it was too exhausting. It's a weird feeling. I do believe that if I'd go for treatments of some kind that I'd get some results out of it based on that experience alone.
There is always hope!
I see a couple of SCI for home therapy and I will set them up on the bikes for the therapy treatment. Good cardio and keeps the lower extremity muscles healthy.
For cardio I use a SciFit Total Body bike. When you turn the upper part with your arms the lower pedals turn as well so I can strap my legs in and get the blood flowing that way but that's about it as far as stimulation or movement.
My mate told me the valium would kill him eventually, which it did. I have another mate who is on a new trial drug witch contains THC, instead of the valium.
My injury level is at the T5-T6 level. No core muscles whatsoever but was assessed once and the doctor said he could feel contraction down to T-12. I can't do a sit up since everything is practically dead from chest/pec down. With the promising future of stem cells and the symptoms I experience I do think I'll get some function back. To what extent, who really knows but some is better than none. Some people say I'm in denial but whatever I know what I feel.
Red tape on stem cells is slowing things down but I understand the need for it. Don't want to start growing cancer cells or other type stuff that once it starts they can no longer control.
You mentioned atrophy in your friends legs/feet and was wondering did it take long for that to set in after his injury or did it take a tremendous amount of years before it started? I'm asking because I'm 8 years post accident and both my thighs and calves are still around the same size they were before my accident. Dir the record I didn't have chicken legs either. Just wondering if I'm lucky because it certainly doesn't appear to be the norm for people that suffer a SCI. I don't think it's a bad sign just wondering why? It's not like I've been working out my legs, I can't stand up.
That's the sort feeling I get when I try to move my legs. I can't do it for a long time because it's like the leg muscles, sensation/current, whatever you want to call it get too tired to continue. It's like busting a massive workout until you can't go no more. I still try after that but don't receive the same feeling.
The worse is when I wake up in the middle of the night with nerve pain. There's absolutely nothing you can do about it and it drives you crazy.
Right up until he died, he always believed he'd walk again.
Pit Row
It's really an unsettling feeling. Pens, pencils, tennis balls, and so forth felt like I was lifting 500lbs. And you really do get exhausted even though you accomplished basically nothing.
Anyways I hope that gives you some hope, even if it is a little different. For what it's worth I know you ain't crazy. Both my physical therapist and personal trainer seemed to understand as well.
Story
It's just a matter of time.
I'm C7 so I'm a Quadriplegic but thankfully it's mainly just really limited hand control that's frustrating but I'm very aware could be worse
Oh and yeah exoskeleton shit is not at all practical haha
Post a reply to: USA Today: Paralyzed rats walk again after spinal cord surgery