Added reply in a thread Kzizok, any advice? 7/10/2016 6:32 PM

Sorry, haven't been on much. Got out of hospital last night. Didn't meet requirements to be transferred to cc. Not sure what they are. Being sick as hell, and nobody knowing why, isn't one of them apparently. I had an mri of upper and lower back and ... more »

Added reply in a thread Kzizok, any advice? 6/29/2016 7:12 PM

Getting worse by the day. I'm not only fighting some rare medical thing, I'm also fighting drs. They can't comrehend that activity makes me sick, not tired, not fatigued, very, very sick. It doesn't go away either. It lasts for weeks, months, and it ... more »

Added reply in a thread Kzizok, any advice? 6/29/2016 7:07 PM

Thanks.

Added reply in a thread Kzizok, any advice? 6/28/2016 5:44 PM

No, usually clear. I know they did tests on it in hospital. I'm not sure on the bilirubin.

Added reply in a thread Kzizok, any advice? 6/28/2016 5:09 PM

Thanks, it has all the electrolytes?

Added reply in a thread Kzizok, any advice? 6/28/2016 5:08 PM

Sorry, didn't realize I missed so much. I know I've been tested for mold. I'm not sure about lead. I think there's definitely neurological issues. I read a lot of people with some similar symptoms, but the one that I've never seen, is how contracting ... more »

Added reply in a thread Kzizok, any advice? 6/27/2016 9:21 PM

Tsh is in range. I think there is definitely nerve damage. I've been tested for ebv quite a few times, but I guess it might go unseen if not caught in the window. I was tested for Lyme again last week. I realize info found on the net isn't always accurate. ... more »

Added reply in a thread Kzizok, any advice? 6/27/2016 7:21 PM

Thanks Tony, send me a text sometime if you still have my number. I lost your number when I got new phone. Hope you're doing well.

Added reply in a thread Kzizok, any advice? 6/27/2016 7:19 PM

I assume I've been tested for toxoplasmosis. I have all the tests you've listed. They only thing I think I've not had is spinal tap. I definitely have autoimmune dysfunction with Addison's and hypothyroidism. I had never heard of pompe. The atrophying ... more »

Added reply in a thread Kzizok, any advice? 6/27/2016 6:52 PM

Thanks ek, it does seem similar to symptoms of ms, especially my heat issues.

Added reply in a thread Kzizok, any advice? 6/26/2016 9:27 PM

Pm sent to sender. Not sure you'll get it.

Added reply in a thread Kzizok, any advice? 6/26/2016 9:27 PM

I do use milk, lactose free. I don't always though. I have a dog.

Added reply in a thread Kzizok, any advice? 6/26/2016 8:38 PM

Gaporgie, I would love to do that, but I'm bedridden. I barely make it to the bathroom that is about 15 ft away. I was told I don't have gb. I looked up mastocytosis, it doesn't seem to fit. This guy is somewhat similar to me, but he seems a bit better. ... more »

Added reply in a thread Kzizok, any advice? 6/26/2016 8:27 PM

Thanks colintrax, but going for a walk is out of the question. Exertion of any kind makes me feel incredibly ill. My body starts shaking and feels like it's shutting down. I feel violently ill from it. I drink a ton of water, g2, and pedialyte. I eat ... more »

Added reply in a thread Kzizok, any advice? 6/26/2016 7:28 PM

I've had tests to eliminate ALS in the past. I think it was an emg? I could be off on the acronym. Sent current through my muscles to see response. I'm not sure on md or myasthenia gravis. The pulmonologist asked whether I had been tested for mg. I don't ... more »

Added reply in a thread Kzizok, any advice? 6/26/2016 6:47 PM

Thanks mr x. My body shakes my muscles are so weak. They've atrophied quickly.

Started new thread Kzizok, any advice? 6/26/2016 6:23 PM

My mysterious illness has progressed to the point I can't get out of bed. I was in the hospital for four days this week. They found nothing. Cardiologist told me to do physical therapy to regain strength. It is pointless to describe what is going on ... more »

This forum thread has 38 replies

Added reply in a thread Brexit thread 6/25/2016 2:52 PM

It seems a lot of people in GB have felt like they were getting scammed by the results of the vote.

Added reply in a thread Brexit thread 6/25/2016 1:16 PM

Vote doesn't go your way start a petition. Lol

Added reply in a thread Davi Millsaps Wins in Canada, but doesn't... 6/20/2016 3:39 PM

Watch what you say to this guy. He's protected for some reason.